The Dementia Care Partner Hub: An innovative approach to addressing unmet social and health needs

Abstract The well‐being of care partners of people living with dementia, who are family, friends, or neighbors and often unpaid, is often not addressed explicitly in clinical dementia care. Care partners, especially those from systematically marginalized communities, experience substantial unmet social and behavioral needs. We reviewed role model programs and conducted focus groups and interviews with care partners and representatives of community organizations and government agencies. We developed the concept of a Dementia Care Partner Hub as a “one‐stop shop” to connect dementia care partners and service providers with information and resources, meeting a need that is not currently addressed in many communities. While the primary data collection was conducted in Oregon, the findings have relevance for many communities. While various care partner initiatives have been implemented at the federal and state levels, multiple gaps remain. The Dementia Care Partner Hub offers a systematic solution to network existing community resources.

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Publication Details

Journal
Alzheimer s & Dementia Behavior & Socioeconomics of Aging
Published
2025-04-15
DOI
https://doi.org/10.1002/bsa3.70010
Primary Topic
Dementia and Cognitive Impairment Research
Type
article
Field-Weighted Citation Impact
0.00

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article

The Dementia Care Partner Hub: An innovative approach to addressing unmet social and health needs

Sherril B. Gelmon, Walter D Dawson, Jenn Reed
Alzheimer s & Dementia Behavior & Socioeconomics of Aging
Dementia and Cognitive Impairment Research
article

The Dementia Care Partner Hub: An innovative approach to addressing unmet social and health needs

Sherril B. Gelmon, Walter D Dawson, Jenn Reed
article en

Abstract

Abstract The well‐being of care partners of people living with dementia, who are family, friends, or neighbors and often unpaid, is often not addressed explicitly in clinical dementia care. Care partners, especially those from systematically marginalized communities, experience substantial unmet social and behavioral needs. We reviewed role model programs and conducted focus groups and interviews with care partners and representatives of community organizations and government agencies. We developed the concept of a Dementia Care Partner Hub as a “one‐stop shop” to connect dementia care partners and service providers with information and resources, meeting a need that is not currently addressed in many communities. While the primary data collection was conducted in Oregon, the findings have relevance for many communities. While various care partner initiatives have been implemented at the federal and state levels, multiple gaps remain. The Dementia Care Partner Hub offers a systematic solution to network existing community resources.

Alzheimer s & Dementia Behavior & Socioeconomics of AgingVol. 1(2)
Portland State University (US), Oregon Health & Science University (US)
Portland State University
Openalex Percentile: Top 90%
Dementia and Cognitive Impairment Research
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