A Qualitative Study of the Ethics of Community Scientists’ Role in Environmental Health Research from the Perspective of Community Scientists and Institutional Review Board Staff

Findings suggest that existing bioethical principles of beneficence, respect for persons, and justice, when interpreted by participants as inclusive of protections and benefits for both the CSs and their community's collective good, reflect the bioethical values of our CS participants. However, better guidance and training is needed for researchers, IRBs, and community collaborators to apply these values and respect and protect the full range of roles for community members participating in research. https://doi.org/10.1289/EHP15824.