Adult congenital heart disease patients understanding of their condition in Central and Southeastern Europe: current status and opportunity for addressing shortfalls and for better care
Significant knowledge gaps exist amongst CESEE ACHD patients regarding their heart condition. Better ACHD patient education on current health and prospects is urgently needed. The results of this study should serve for developing congenital heart disease structured transitional and educational programmes in CESEE incorporating technology for their ACHD care and education to enhance patients' health knowledge and healthy life-behaviours to positively influence their life-long prospects.
Authors
- Agnese Strenge
- Monika Komar (ORCID: https://orcid.org/0000-0001-5341-2947)
- Iveta Šimková (ORCID: https://orcid.org/0000-0002-6051-2724)
- Nejc Pavšič (ORCID: https://orcid.org/0000-0001-8519-0541)
- Lina Gumbienė (ORCID: https://orcid.org/0000-0002-6957-2985)
- Margarita Brida (ORCID: https://orcid.org/0000-0001-8754-8156)
- Petra Antonová (ORCID: https://orcid.org/0000-0003-3272-7928)
- Salvatore De Rosa (ORCID: https://orcid.org/0000-0001-5388-942X)
- Tamara Kovačević-Preradović (ORCID: https://orcid.org/0000-0002-7100-5189)
- Michael Athanassios Gatzoulis (ORCID: https://orcid.org/0000-0002-2700-7232)
- Pencho Kratunkov (ORCID: https://orcid.org/0000-0001-9021-8086)
- Katja Prokšelj (ORCID: https://orcid.org/0000-0003-1301-632X)
- Elizabeta Srbinovska Kostovska
- Dorottya Kecskeméti
- І. G. Lebid (ORCID: https://orcid.org/0000-0002-6005-249X)
- Tatiana Valkovičová
- Raili Tagen
- Dovilė Žebrauskienė
- Lidia Tomkiewicz-Pająk
- Elena Panfile
- H Balint
- Hristina Camovska Sesoska
- Sandra Paeglite - Pulke
Institutions
- Semmelweis University (HU)
- Jagiellonian University (PL)
- Valve (United States) (US)
- University of Rijeka (HR)
- Slovak Medical University (SK)
- Vilnius University (LT)
- University of Banja Luka (BA)
- Ljubljana University Medical Centre (SI)
- Tartu University Hospital (EE)
- Harefield Hospital (GB)
- University Medical Center (US)
- Moldova State University (MD)
- Gottsegen National Cardiovascular Center (HU)
- Magna Graecia University (IT)
- National Institute of Cardiovascular Diseases (SK)
- University Hospital in Motol (CZ)
- Pauls Stradiņš Clinical University Hospital (LV)
- Lung Institute (US)
- John Paul II Hospital (PL)
- University Clinic of Traumatology (AT)
- Adult Congenital Heart Association (US)
- PHI University Psychiatric Clinic - Skopje (MK)
- Imperial College London (GB)
Publication Details
- Journal
- European Journal of Preventive Cardiology
- Published
- 2025-04-16
- DOI
- https://doi.org/10.1093/eurjpc/zwaf207
- Citations
- 1
- Primary Topic
- Congenital Heart Disease Studies
- Type
- article
- Field-Weighted Citation Impact
- 1.35