Preferences for Communication About Prognosis Among Children With Cancer, Parents, and Oncologists
In this qualitative study of prognostic communication preferences, patients, parents, and oncologists recommended eliciting patient and parent preferences for prognostic disclosure in advance and provided advice for achieving this goal. Future work will integrate these recommendations in the development of targeted interventions to support individualized prognostic disclosure in advanced pediatric cancer.
Authors
- Justin Nathaniel Baker (ORCID: https://orcid.org/0000-0002-6584-6483)
- Erica C. Kaye (ORCID: https://orcid.org/0000-0002-6522-3876)
- Pamela S. Hinds (ORCID: https://orcid.org/0000-0001-6491-6649)
- Shoshana Mehler
- Jennifer W. Mack (ORCID: https://orcid.org/0000-0001-5791-4178)
- Calliope Reeves
- Carol A. Christianson
- Tara M. Brinkman (ORCID: https://orcid.org/0000-0002-4250-6160)
- Harmony Farner
Institutions
- Rhodes College (US)
- St. Jude Children's Research Hospital (US)
- Children's National (US)
- George Washington University (US)
- NYU Langone Health (US)
- Dana-Farber Cancer Institute (US)
- Stanford University (US)
Publication Details
- Journal
- JAMA Network Open
- Published
- 2025-04-16
- DOI
- https://doi.org/10.1001/jamanetworkopen.2025.5431
- Citations
- 5
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 17.47
Funders
- American Lebanese Syrian Associated Charities
- National Cancer Institute