Balancing Privacy, Trust, and Equity: Patient Perspectives on Substance Use Disorder Data Sharing
These findings underscore the ethical imperative to address stigma and foster trust to promote equitable SUD data sharing. Policies must empower patients with control over sensitive health information while ensuring cultural competence and fairness in care delivery. Ensuring that patients feel confident in how their data are used may encourage greater participation in health information exchange, ultimately supporting more effective and individualized SUD care.
Authors
- Mary Jo Whitfield (ORCID: https://orcid.org/0000-0002-6715-2098)
- Darwyn Chern (ORCID: https://orcid.org/0000-0001-5579-3122)
- Aimee N. C. Campbell (ORCID: https://orcid.org/0000-0003-4247-9980)
- Michael Todd (ORCID: https://orcid.org/0000-0002-1981-4245)
- Eric Lott
- Mengyi Wei (ORCID: https://orcid.org/0000-0001-6294-2296)
- Adela Grando (ORCID: https://orcid.org/0000-0002-5769-8556)
- Eran Greenberg (ORCID: https://orcid.org/0000-0002-1630-0628)
- Nick Stavros
Institutions
- Jewish Board of Family and Children's Services (US)
- Columbia University Irving Medical Center (US)
- Community Bridges (US)
- Building Bridges (US)
- Arizona State University (US)
Publication Details
- Journal
- International Journal of Environmental Research and Public Health
- Published
- 2025-04-15
- DOI
- https://doi.org/10.3390/ijerph22040617
- Citations
- 2
- Primary Topic
- HIV, Drug Use, Sexual Risk
- Type
- article
- Field-Weighted Citation Impact
- 2.71
Funders
- National Institute on Drug Abuse