Development of a Question Prompt List for People Living With Primary Biliary Cholangitis: A Delphi Study
The PBC patient question prompt list serves as a user-facing document, to enhance the patient experience, and drive value-based healthcare in routine clinical practice.
Authors
- George Ν. Dalekos (ORCID: https://orcid.org/0000-0001-7075-8464)
- Marco Carbone (ORCID: https://orcid.org/0000-0003-1445-0443)
- Bettina E. Hansen (ORCID: https://orcid.org/0000-0001-8307-3341)
- Robert Mitchell-Thain (ORCID: https://orcid.org/0009-0007-7546-7835)
- George F. Mells (ORCID: https://orcid.org/0000-0002-7962-5286)
- Jef Verbeek (ORCID: https://orcid.org/0000-0002-1549-8003)
- Alessio Gerussi (ORCID: https://orcid.org/0000-0002-5086-0514)
- Christoph Schramm (ORCID: https://orcid.org/0000-0003-1081-5556)
- Adriaan van der Meer (ORCID: https://orcid.org/0000-0002-9871-4022)
- K.V. Kowdley
- Cynthia Levy (ORCID: https://orcid.org/0000-0001-5498-6037)
- E. Werner (ORCID: https://orcid.org/0009-0003-9410-781X)
- Palak Trivedi (ORCID: https://orcid.org/0000-0002-4009-8087)
- Nadir Abbas (ORCID: https://orcid.org/0000-0002-8847-7713)
- Angela Leburgue
- Nora Cazzagon (ORCID: https://orcid.org/0000-0002-6937-8664)
- Andrew L. Mason (ORCID: https://orcid.org/0000-0002-0470-9522)
- Frederik Nevens (ORCID: https://orcid.org/0000-0003-2905-5112)
- Christophe Corpechot (ORCID: https://orcid.org/0000-0002-7920-9784)
- David E. Jones (ORCID: https://orcid.org/0000-0002-0083-5564)
- Maria C B van Hooff
- José Willemse
- Gideon M. Hirschfield
- Gemma Weijsters
Institutions
- University of Padua (IT)
- University of Miami (US)
- University of Alberta (CA)
- Inserm (FR)
- Universität Hamburg (DE)
- University of Toronto (CA)
- University of Cambridge (GB)
- Erasmus MC (NL)
- Sorbonne Université (FR)
- NIHR Birmingham Liver Biomedical Research Unit (GB)
- Association pour l'Utilisation du Rein Artificiel dans la région Lyonnaise (FR)
- Centre de Référence des Maladies Autoinflammatoires et des Amyloses (FR)
- University of Miami Health System (US)
- Hôpital Saint-Antoine (FR)
- Foundation Scotland (GB)
- University Hospital of Larissa (GR)
- University Medical Center Hamburg-Eppendorf (DE)
- Azienda Ospedaliera San Gerardo (IT)
- Liver Institute Northwest (US)
- Association of Dutch Burn Centres (NL)
- Centre de Recherche Saint-Antoine (FR)
- ERN GUARD-Heart (NL)
- Toronto Liver Centre (CA)
- NIHR Birmingham Biomedical Research Centre (GB)
- University of Milano-Bicocca (IT)
- Newcastle University (GB)
- Erasmus University Rotterdam (NL)
- KU Leuven (BE)
Publication Details
- Journal
- Clinical Gastroenterology and Hepatology
- Published
- 2025-04-15
- DOI
- https://doi.org/10.1016/j.cgh.2025.01.037
- Citations
- 2
- Primary Topic
- Liver Diseases and Immunity
- Type
- article
- Field-Weighted Citation Impact
- 2.64
Funders
- National Institute for Health and Care Research
- Institut National de la Santé et de la Recherche Médicale
- Erasmus Medisch Centrum
- Assistance publique-Hôpitaux de Paris
- Sorbonne Université
- Birmingham Biomedical Research Centre