The Indian Childhood Cancer Survivorship (C2S) Study: Making Of The Indian Childhood Cancer Survivorship Registry & Cohort; An INPHOG Study
Introductions: A priority area for the pediatric oncology community is care of childhood cancer survivors(CCS), monitoring of late effects and optimizing quality of life.This has been a neglected area and no registry for CCS existed in India in the past.The C2S study established the first Indian registry of CCS and formed the multicentre Indian childhood cancer survivorship cohort.Methodology: Centres across India were invited to participate in the Childhood Cancer Survivorship (C2S) study.Clinical, demographic , treatment exposure including cumulative dose details of children completing cancer treatment were recorded on an online database.Follow up was done by teleconsultation/physical visit to hospital.Outcomes of follow up were recorded. Results:The study was initiated in 2016 and has completed eight years.Twenty-four centres across India are participating and data of 4101 survivors (16 centres) available till December 2023 was analysed.A majority were males (68.%) and in the age group of 2-14 (62%) years.
Authors
- Amita Mahajan (ORCID: https://orcid.org/0000-0002-7646-9468)
- Piali Mandal (ORCID: https://orcid.org/0000-0002-2625-7598)
- Revathi Raj (ORCID: https://orcid.org/0000-0003-1415-4142)
- Prakruthi Kaushik (ORCID: https://orcid.org/0000-0002-5130-5707)
- Siyaram Didel (ORCID: https://orcid.org/0000-0003-4578-2184)
- Yamini Krishnan (ORCID: https://orcid.org/0000-0001-7255-3382)
- Venkatraman Radhakrishnan (ORCID: https://orcid.org/0000-0002-7557-5816)
- Prachi Jain (ORCID: https://orcid.org/0000-0002-4560-8330)
- Rachna Seth (ORCID: https://orcid.org/0000-0002-0967-789X)
- Chandan Kumar (ORCID: https://orcid.org/0000-0002-2351-2442)
- Nishant Verma (ORCID: https://orcid.org/0000-0002-8997-1801)
- Gargi Das (ORCID: https://orcid.org/0000-0003-4596-2820)
- Gauri Kapoor (ORCID: https://orcid.org/0000-0002-0720-8336)
- V. Gupta (ORCID: https://orcid.org/0000-0002-9190-1757)
- Priya Kumari
- Nita Radhakrishnan (ORCID: https://orcid.org/0000-0002-7941-5641)
- Amitabh Singh (ORCID: https://orcid.org/0000-0002-4440-5339)
- Sujata Sharma
Publication Details
- Journal
- OncoDaily Medical Journal
- Published
- 2025-01-01
- DOI
- https://doi.org/10.69690/odmj-018-0425-2188
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 0.00