I’m Fine with Autistic People, but Other Folks Feel Uncomfortable: Exploring the Gap Between Reported Community Attitudes and Autistic Lived Experience

Background: Studies of community attitudes toward autism often report predominantly positive or neutral attitudes toward autistic people. However, studies of the experiences of autistic people and their families consistently report high levels of stigma, discrimination, and exclusion from society. Methods: Our autistic-led study utilized the “third person” method to assess subconscious attitudes toward autism, by asking participants how they and hypothetical “others” would feel about interacting with autistic people in a range of scenarios. We conducted an online survey using a probability-based panel representative of the Australian population with 1626 non-autistic adults who reported not having close contact with an autistic person. Results: The majority of the participants agreed that there is a need to find better ways to support autistic people and that autistic people should be able to access disability services, although this varied by service type. There were overt differences in participants’ reports of how they would feel about meeting an autistic person and how “other people” would feel in the same situation, with other people consistently described as considerably more likely to feel uncomfortable or very uncomfortable. Participants also reported a lower level of comfort, for both themselves and others, with engaging and interacting with autistic adults compared with autistic children. These findings provide a bridge between studies with and by non-autistic people that report positive attitudes and studies with and by autistic people that report experiences of exclusion, discrimination, and stigmatization. The significant literature on, and lived experience of, autistic children and their families would suggest that there is a considerable element of social desirability bias in responses to surveys of attitudes toward autism and that in reality our communities are populated with these “other” people. Conclusion: Future research into community attitudes should utilize measures such as these that address social desirability bias and explore deeply held beliefs and attitudes that may not be expressed in response to direct questions. Future policy and advocacy interventions should focus on acceptance and appreciation of autistic adults. These are the attitudes we need to change if we are going to build a society that is truly inclusive.