Pre-Surgical Education and Discharge Planning for Head and Neck Cancer: A Qualitative Study of Patient and Caregiver Perspectives
IntroductionResearch on pre-surgical education and discharge planning for head and neck cancer (HNC) remains limited. To address this gap, this qualitative study aims to assess patient and caregiver perspectives on pre-surgical education and discharge planning in HNC surgery.Methods and MaterialsSemi-structured interviews were conducted with 13 individuals who received HNC surgery and 10 of their caregivers after hospital discharge. Participants were recruited from an NCI-designated Comprehensive Cancer Center and a community oncology setting.ResultsFive key recommendations for HNC surgical care emerged from the data: (1) improve communication about anticipated side effects; (2) provide targeted education through multiple modalities; (3) connect patients and caregivers with individuals who have gone through HNC surgery; (4) improve patient-provider communication for individuals with speech, vision, and hearing impairment; and (5) present the best and worst case scenarios to prepare individuals for post-surgical recovery. ConclusionParticipants identified gaps in pre-surgical education and discharge planning and provided recommendations to improve HNC surgical care.
Authors
- Young‐Rock Hong (ORCID: https://orcid.org/0000-0002-0366-5687)
- Kea L. Turner (ORCID: https://orcid.org/0000-0002-7885-0879)
- Maija Reblin (ORCID: https://orcid.org/0000-0003-3108-465X)
- J. Scott Magnuson (ORCID: https://orcid.org/0000-0001-7527-3589)
- Oliver T. Nguyen (ORCID: https://orcid.org/0000-0003-2852-7106)
- Ameer Basta (ORCID: https://orcid.org/0000-0002-7238-6454)
- Krupal Patel (ORCID: https://orcid.org/0000-0002-2285-0386)
- Amir Alishahi Tabriz (ORCID: https://orcid.org/0000-0002-6273-9105)
- Emma Hume (ORCID: https://orcid.org/0000-0002-9344-8490)
- Marian Mikhael (ORCID: https://orcid.org/0000-0002-4438-5112)
- Bhargav Kansara
Institutions
- University of Vermont (US)
- University of North Carolina at Chapel Hill (US)
- Emory University (US)
- University of South Florida (US)
- AdventHealth Orlando (US)
- Moffitt Cancer Center (US)
Publication Details
- Journal
- Cancer Control
- Published
- 2025-04-14
- DOI
- https://doi.org/10.1177/10732748251331979
- Citations
- 1
- Primary Topic
- Head and Neck Cancer Studies
- Type
- article
- Field-Weighted Citation Impact
- 1.85