“But Then They Don’t Use the Same Money to Give Us Services”: Attitudes and Perspectives on Dementia Care Community-Based Research in Hispanic Communities
Core cultural values, along with commonly held beliefs about dementia, influence the caregiving roles assumed by Hispanic/Latino caregivers. Further, cultural values inform the utilization of available supportive programs and may influence participation in community-based dementia-support interventions. This paper discusses attitudes and perspectives on participating in community-based dementia-support interventions using a focus group methodology of Hispanic/Latino staff (<i>n</i> = 5). Findings from longitudinal focus groups (<i>n</i> = 3) with Hispanic/Latino staff, serving predominantly Hispanic/Latino populations, are presented. Findings highlight the value of research funding to support immediate care-related needs over future-focused research. They also emphasize the importance of culturally appropriate terminology and the centrality of cultural values that align with dementia-support research to effectively engage Hispanic/Latino populations. As supportive interventions for dementia caregivers are developed and implemented in real-world settings, including and aligning with cultural elements (i.e., family-oriented, family relationships) may encourage greater participation of Hispanic/Latino caregivers in research.
Authors
- Laura N. Gitlin (ORCID: https://orcid.org/0000-0003-2869-473X)
- Manka Nkimbeng (ORCID: https://orcid.org/0000-0001-7414-921X)
- Joseph E. Gaugler (ORCID: https://orcid.org/0000-0003-4797-485X)
- Sokha Koeuth (ORCID: https://orcid.org/0000-0003-1085-7270)
- Elma Johnson
- Katherine Marx (ORCID: https://orcid.org/0000-0001-7717-1041)
- Lauren Parker (ORCID: https://orcid.org/0000-0002-3143-2979)
- Alma Rincongallardo
Institutions
- University of Minnesota (US)
- Johns Hopkins University (US)
- University of Minnesota System (US)
- Drexel University (US)
Publication Details
- Journal
- Journal of Applied Gerontology
- Published
- 2025-04-14
- DOI
- https://doi.org/10.1177/07334648251331719
- Primary Topic
- Dementia and Cognitive Impairment Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Institute on Aging