“But Then They Don’t Use the Same Money to Give Us Services”: Attitudes and Perspectives on Dementia Care Community-Based Research in Hispanic Communities

Core cultural values, along with commonly held beliefs about dementia, influence the caregiving roles assumed by Hispanic/Latino caregivers. Further, cultural values inform the utilization of available supportive programs and may influence participation in community-based dementia-support interventions. This paper discusses attitudes and perspectives on participating in community-based dementia-support interventions using a focus group methodology of Hispanic/Latino staff (<i>n</i> = 5). Findings from longitudinal focus groups (<i>n</i> = 3) with Hispanic/Latino staff, serving predominantly Hispanic/Latino populations, are presented. Findings highlight the value of research funding to support immediate care-related needs over future-focused research. They also emphasize the importance of culturally appropriate terminology and the centrality of cultural values that align with dementia-support research to effectively engage Hispanic/Latino populations. As supportive interventions for dementia caregivers are developed and implemented in real-world settings, including and aligning with cultural elements (i.e., family-oriented, family relationships) may encourage greater participation of Hispanic/Latino caregivers in research.

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Publication Details

Journal
Journal of Applied Gerontology
Published
2025-04-14
DOI
https://doi.org/10.1177/07334648251331719
Primary Topic
Dementia and Cognitive Impairment Research
Type
article
Field-Weighted Citation Impact
0.00

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article

“But Then They Don’t Use the Same Money to Give Us Services”: Attitudes and Perspectives on Dementia Care Community-Based Research in Hispanic Communities

Laura N. Gitlin, Manka Nkimbeng, Joseph E. Gaugler, Sokha Koeuth et al.
Journal of Applied Gerontology
Dementia and Cognitive Impairment Research
article

“But Then They Don’t Use the Same Money to Give Us Services”: Attitudes and Perspectives on Dementia Care Community-Based Research in Hispanic Communities

Laura N. Gitlin, Manka Nkimbeng, Joseph E. Gaugler, Sokha Koeuth, Elma Johnson, Katherine Marx, Lauren Parker, Alma Rincongallardo
article en

Abstract

Core cultural values, along with commonly held beliefs about dementia, influence the caregiving roles assumed by Hispanic/Latino caregivers. Further, cultural values inform the utilization of available supportive programs and may influence participation in community-based dementia-support interventions. This paper discusses attitudes and perspectives on participating in community-based dementia-support interventions using a focus group methodology of Hispanic/Latino staff (<i>n</i> = 5). Findings from longitudinal focus groups (<i>n</i> = 3) with Hispanic/Latino staff, serving predominantly Hispanic/Latino populations, are presented. Findings highlight the value of research funding to support immediate care-related needs over future-focused research. They also emphasize the importance of culturally appropriate terminology and the centrality of cultural values that align with dementia-support research to effectively engage Hispanic/Latino populations. As supportive interventions for dementia caregivers are developed and implemented in real-world settings, including and aligning with cultural elements (i.e., family-oriented, family relationships) may encourage greater participation of Hispanic/Latino caregivers in research.

Journal of Applied GerontologyVol. 45(1)
University of Minnesota (US), Johns Hopkins University (US), University of Minnesota System (US), Drexel University (US)
National Institute on Aging
Openalex Percentile: Top 90%
Dementia and Cognitive Impairment Research
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