Content validation of the Angioedema Quality of Life Questionnaire (AE-QoL) in a population of adult and adolescent patients with hereditary angioedema (HAE)
This study presents evidence that supports the content validity of the AE-QoL in adult and adolescent patients with HAE. While revisions could be considered prior to using the instrument with samples of adolescent patients with HAE, in general, adolescents and adults with HAE found the measure relevant, comprehensive, and comprehensible.
Authors
- K D Jacobs
- April Foster (ORCID: https://orcid.org/0000-0002-9663-7510)
- Lynne Broderick (ORCID: https://orcid.org/0000-0001-8783-9877)
- Laura Tesler Waldman (ORCID: https://orcid.org/0000-0001-9968-7057)
- Aaron Yarlas
- Laura Bordone
Institutions
- Ionis Pharmaceuticals (United States) (US)
- IQVIA (United States) (US)
- Quality Research (US)
Publication Details
- Journal
- Journal of Patient-Reported Outcomes
- Published
- 2025-04-12
- DOI
- https://doi.org/10.1186/s41687-025-00876-3
- Citations
- 2
- Primary Topic
- Coagulation, Bradykinin, Polyphosphates, and Angioedema
- Type
- article
- Field-Weighted Citation Impact
- 3.25
Funders
- Ionis Pharmaceuticals