The research relationship: participant perspectives on consent in biobanking
Focussing on the ongoing research relationship -and the practices that sustain it- is more important than the specific wording on consent forms signed at recruitment. We argue this will be more effective in meeting participant expectation as well as supporting ethical research.
Authors
- Gabrielle Samuel (ORCID: https://orcid.org/0000-0001-8111-2730)
- Kate Lyle (ORCID: https://orcid.org/0000-0001-9265-7648)
- Anneke Lucassen (ORCID: https://orcid.org/0000-0003-3324-4338)
- Fenella Starkey
- Rachel L Thompson (ORCID: https://orcid.org/0000-0002-4553-6146)
- Jo Holliday (ORCID: https://orcid.org/0000-0003-4568-7320)
- Susan Wallace (ORCID: https://orcid.org/0000-0002-2995-1673)
Institutions
- University of Leicester (GB)
- King's College London (GB)
- University of Oxford (GB)
- UK Biobank (GB)
Publication Details
- Journal
- BMC Medical Ethics
- Published
- 2025-04-12
- DOI
- https://doi.org/10.1186/s12910-025-01199-0
- Citations
- 2
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 3.76
Funders
- Wellcome Trust