Developing a learning network to promote person-centred integrated care for people with stroke and TIA – a sensemaking approach

With its abrupt onset, stroke inevitably leads to a sudden change in life for the person surviving a stroke and their family. Having a stroke includes, not only a process of rehabilitation and recovery but also a process of making sense of and adapting to a new reality. Even though stroke is an acute condition its long-term complications and disability require a complex recovery process and dependency on support from the healthcare system. The recovery and sensemaking process often includes the need of involvement from a range of interventions and support services that requires coordination of multiple care providers and intersectoral collaboration within the healthcare delivery system. Unfortunately, healthcare systems are struggling with fragmentation and poor coordination of care and rehabilitation to ensure adequate quality post stroke care and support based on stroke survivors and their family’s needs. The overall aim of this project is to develop a continuous learning network for stroke care and rehabilitation to promote collaborative learning of stroke survivors, their families, healthcare professionals, managers, and policy makers. The project will use sensemaking theory, a participatory action research approach and co-design to develop a collaborative and interactive platform with the ultimate goal of promoting a more person-centred and integrated care for stroke survivors and their families. To achieve the overall aim the project has five objectives: Understanding how the current stroke care trajectory is experienced from the perspective of healthcare professionals, managers and policy makers and how they make sense of their current role, situation and context. Explore the needs of stroke survivors and their families and how they make sense of their new situation post stroke and how it changes over time. Identify facilitators and barriers towards developing a continuous learning network. Engage the stakeholders in a co-design process to ensure that their experiences, needs and preferences is reflected in the design of the network. Develop a prototype of an interactive digital platform for a continuous learning network. The project will contribute with knowledge of current networks and how the current stroke care trajectory is experienced from the perspective of stroke survivors and their families, healthcare professionals, managers and policymakers and how these stakeholders make sense of their current role, situation and situation and context. The continuous learning network will connect stroke survivors and their families, healthcare professionals and organizations for the purpose of sharing knowledge, best practices, and innovations. The network allows for the exchange of information and ideas, the identification of emerging trends, and co-creation of more sustainable solutions to complex healthcare challenges. The project will further provide learning on how sensemaking theory and participatory action research can be used to promote continuous learning, collaboration and knowledge exchange between the involved stakeholder to promote the implementation of a more person-centred integrated care. The long-term goal of the continuous learning network is to improve patient experiences and outcomes through better healthcare delivery and by enhancing the knowledge and skills of healthcare providers.