“We Were Still Left in the Back Field, Not Knowing”: Pediatric Cancer Patients and Parents Describe Obstacles to Prognostic Communication
Many patients/parents perceived prognostic disclosure to be suboptimal and identified specific features underpinning poor-quality prognostic communication. These findings will inform future collaborative research with patients, parents, and multidisciplinary clinicians to codesign an intervention that individualizes prognostication to align with patient/parent preferences for receiving information and fostering connection.
Authors
- Justin Nathaniel Baker (ORCID: https://orcid.org/0000-0002-6584-6483)
- Erica C. Kaye (ORCID: https://orcid.org/0000-0002-6522-3876)
- Pamela S. Hinds (ORCID: https://orcid.org/0000-0001-6491-6649)
- Shoshana Mehler
- Jennifer W. Mack (ORCID: https://orcid.org/0000-0001-5791-4178)
- Carol A. Christianson
- Alba Ayala (ORCID: https://orcid.org/0000-0003-4855-4443)
- Tara M. Brinkman (ORCID: https://orcid.org/0000-0002-4250-6160)
- Harmony Farner
Institutions
- St. Jude Children's Research Hospital (US)
- Children's National (US)
- George Washington University (US)
- Central University of the Caribbean (PR)
- NYU Langone Health (US)
- Dana-Farber Cancer Institute (US)
- Stanford University (US)
Publication Details
- Journal
- Cancer Medicine
- Published
- 2025-04-01
- DOI
- https://doi.org/10.1002/cam4.70810
- Citations
- 4
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 13.98
Funders
- American Lebanese Syrian Associated Charities
- National Cancer Institute