Informal caregiving following stroke: a qualitative exploration of carer self-identification, care-related language and support experiences

Individuals identify as 'carers' at different points and to different extents throughout the stroke trajectory. Findings outline the factors that facilitate this self-identification process and those which constitute challenges to adjusting to the role. Recommendations are made relating to the accessibility of support for informal carers of stroke survivors, including: use of more accessible and inclusive care-related language, educational needs relating to what a 'carer' is and involvement of carers and wider family in the rehabilitation process.