Consensus-based recommendations for the rehabilitation of children with arthrogryposis multiplex congenita: an integrated knowledge translation approach
Consensus-based, expert validated recommendations for the rehabilitation of children with AMC were developed by a wide range of stakeholders, healthcare users and providers. The proposed recommendations are expected to contribute to improving child- and family-centered practice and health outcomes. Future work includes a knowledge translation strategy to promote sharing and implementation of the recommendations in practice.
Authors
- Alicja Fąfara (ORCID: https://orcid.org/0000-0003-0641-846X)
- Trudy Wong
- Verity Pacey (ORCID: https://orcid.org/0000-0002-5577-2732)
- Clarice Ribeiro Soares Araújo (ORCID: https://orcid.org/0000-0002-4590-9088)
- Ann Flanagan (ORCID: https://orcid.org/0000-0002-3487-9522)
- Francis Lacombe
- André Bussières (ORCID: https://orcid.org/0000-0002-2818-6949)
- Maureen Donohoe (ORCID: https://orcid.org/0000-0001-8878-1857)
- Marie A. Walker
- Sarah Cachecho (ORCID: https://orcid.org/0000-0003-3343-4449)
- Ani Samargian
- Noémi Dahan‐Oliel (ORCID: https://orcid.org/0000-0001-8567-7173)
- Unni Steen
- Lisa V. Wagner (ORCID: https://orcid.org/0000-0002-4460-9841)
- Bart Kowalczyk
- Camille Costa
- Courtney Krakie
- Carolina Navalón
Institutions
- Jagiellonian University (PL)
- Alfred I. duPont Hospital for Children (US)
- Sunnaas sykehus (NO)
- Shriners Hospitals for Children - Canada (CA)
- Uniwersytecki Szpital Dziecięcy (PL)
- Spanish Multiple Sclerosis Network (ES)
- Shriners Hospitals for Children - Greenville (US)
- Shriners Hospitals for Children - Northern California (US)
- Centre de réadaptation Lethbridge-Layton-Mackay (CA)
- Shriners Hospitals for Children - Chicago (US)
- Walker (United States) (US)
- McGill University (CA)
- Université du Québec à Trois-Rivières (CA)
- Université de Montréal (CA)
- Macquarie University (AU)
Publication Details
- Journal
- Orphanet Journal of Rare Diseases
- Published
- 2025-04-09
- DOI
- https://doi.org/10.1186/s13023-025-03671-x
- Citations
- 1
- Primary Topic
- Neurogenetic and Muscular Disorders Research
- Type
- article
- Field-Weighted Citation Impact
- 1.63
Funders
- Natera
- Fonds de Recherche du Québec - Santé