Medical decision-making experiences of persons with dementia and their carepartners: a qualitative study
Most patients with mild-to-moderate dementia and carepartners approach medical intervention decision-making guided by their understanding of the dementia prognosis, but the risks of medical interventions are often unaddressed in discussions with the clinical team, sometimes burdening dyads with undesirable consequences to their quality-of-life. Clinicians should provide dementia-related risks regarding medical intervention outcomes to best facilitate decision-making conversations and advance care planning.
Authors
- Jennifer Tjia (ORCID: https://orcid.org/0000-0003-4541-0460)
- Keren Ladin (ORCID: https://orcid.org/0000-0002-4310-8260)
- Priscilla Gazarian (ORCID: https://orcid.org/0000-0002-4928-293X)
- Thalia Porteny (ORCID: https://orcid.org/0000-0002-2622-4040)
- Stephen Perez
- Joel S. Weissman (ORCID: https://orcid.org/0000-0002-4990-6263)
- Amanda J. Reich (ORCID: https://orcid.org/0000-0001-5922-4154)
- Kristen Kennefick
- Audrey Covaleski
- Mary Lynch
Institutions
- Tufts University (US)
- Brigham and Women's Hospital (US)
- Harvard University (US)
- University of Massachusetts Chan Medical School (US)
- University of Massachusetts Boston (US)
Publication Details
- Journal
- BMC Palliative Care
- Published
- 2025-04-09
- DOI
- https://doi.org/10.1186/s12904-025-01710-9
- Citations
- 2
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 3.76
Funders
- National Institutes of Health