Improving the Transition from Pediatric to Adult Healthcare: Recommendations from Young Adults with Lived Experience

Background: The process of transitioning from pediatric to adult healthcare is a pivotal juncture in the overall life course of young adults (YAs) with complex care needs (CCN) and their families. As service demands increase for this population, healthcare providers must determine the best ways to meet their needs. Following the transition to adult healthcare, YAs are vulnerable to poor outcomes, such as increased stress and repeated ER visits. Studies that explore how to address their needs often do not reflect the perspectives of YAs. As such, seeking their input about health services is a crucial step towards improving service delivery. Objective: This study aimed to explore the experiences and recommendations of YAs with CCN to improve the transition process from pediatric to adult healthcare across settings and sectors. Methods: A qualitative descriptive design was used. Semi-structured interviews were conducted with 23 young adults aged 19–29 with CCN from a small Canadian province. Maximum variation sampling was used to capture diverse perspectives from individuals with an array of CCN. Data was managed using NVivo software and analyzed using inductive thematic analysis. Results: The following themes were identified in the data, highlighting the importance of: 1) continuity of care, 2) improved access to care and supports, 3) transition readiness, and 4) a patient-centred care team. Conclusion: Results from this study can inform practice, policy, and research by guiding the development of service delivery improvement strategies for YAs and their families involved in the transition from pediatric to adult healthcare.