Disruptive Impacts of Developmental and Epileptic Encephalopathies on Patient and Family Life: a Quality-of-Life Survey (P1-9.012)
To characterize normal and disruptive symptoms and understand effect on daily life, a survey was administered to caregivers of individuals with developmental and epileptic encephalopathies (DEEs).
Authors
- Laurie Bailey
- Tracy Dixon‐Salazar (ORCID: https://orcid.org/0000-0002-7801-1741)
- Aisa Manzo
- Mercedes Martı́n-López (ORCID: https://orcid.org/0000-0002-6869-9669)
- Mary Anne Meskis (ORCID: https://orcid.org/0000-0003-0748-7774)
- Amélie Lothe (ORCID: https://orcid.org/0009-0001-9337-054X)
- Andrea Wilkinson
Institutions
- Dravet Syndrome Foundation (US)
- Lennox-Gastaut Syndrome Foundation (US)
- Rome Foundation (US)
Publication Details
- Journal
- Neurology
- Published
- 2025-04-07
- DOI
- https://doi.org/10.1212/wnl.0000000000210597
- Primary Topic
- Epilepsy research and treatment
- Type
- article
- Field-Weighted Citation Impact
- 0.00