Motor Outcomes to Validate Evaluations in Facioscapulohumeral Muscular Dystrophy (MOVE FSHD): Interim Baseline Data and Potential Predictors for FSHD (S16.005)
The MOVE FSHD study aims to determine the predictive value of clinical and motor assessments, patient-reported outcomes, imaging, and tissue biomarkers on disease progression in FSHD.
Authors
- Nicholas E. Johnson (ORCID: https://orcid.org/0000-0002-3917-4257)
- Bakri Elsheikh (ORCID: https://orcid.org/0009-0002-4129-3498)
- Channa Hewamadduma
- Leann Lewis
- Angela Genge (ORCID: https://orcid.org/0000-0001-5587-9946)
- Alrabi Tawil
- Jaya Trivedi (ORCID: https://orcid.org/0000-0001-6112-2325)
- John Day (ORCID: https://orcid.org/0000-0002-0086-9529)
- Dennis Shaw (ORCID: https://orcid.org/0000-0003-4007-6432)
- Stacy Dixon
- Seth D. Friedman (ORCID: https://orcid.org/0000-0001-8785-7215)
- Leo H. Wang (ORCID: https://orcid.org/0000-0002-5079-1416)
- Hanns Lochmüller (ORCID: https://orcid.org/0000-0003-2324-8001)
- Russell J. Butterfield (ORCID: https://orcid.org/0000-0002-8452-7189)
- Jeffrey Statland (ORCID: https://orcid.org/0000-0003-0790-5315)
- Katy Eichinger (ORCID: https://orcid.org/0000-0003-4623-7014)
- Perry B. Shieh (ORCID: https://orcid.org/0000-0001-7145-7663)
- Doris G. Leung (ORCID: https://orcid.org/0000-0002-2558-7798)
- William B. Martens (ORCID: https://orcid.org/0009-0006-6261-3701)
- S. H. Subramony
- Michaela Walker (ORCID: https://orcid.org/0000-0003-1197-1657)
- Erin O’Ferrall (ORCID: https://orcid.org/0000-0002-2902-9697)
Institutions
- Montreal Neurological Institute and Hospital (CA)
- Seattle Children's Hospital (US)
- Kennedy Krieger Institute (US)
- Virginia Commonwealth University (US)
- University of Washington (US)
- University of Utah (US)
- UCLA Health (US)
- Ottawa Hospital (CA)
- Royal Hallamshire Hospital (GB)
- University of Colorado System (US)
- The Ohio State University Wexner Medical Center (US)
- University of Rochester Medical Center (US)
- University of Florida (US)
- Southwestern Medical Center (US)
- University of Kansas Medical Center (US)
- Ottawa Hospital Research Institute (CA)
- Southwestern Medical Center (US)
- McGill University (CA)
- University of Rochester (US)
- The University of Texas Southwestern Medical Center (US)
- Stanford University (US)
Publication Details
- Journal
- Neurology
- Published
- 2025-04-07
- DOI
- https://doi.org/10.1212/wnl.0000000000211387
- Primary Topic
- Musicians’ Health and Performance
- Type
- article
- Field-Weighted Citation Impact
- 0.00