Closing the Care Divide in Rett Syndrome: Connecting Centers of Excellence With Community Clinicians Through a Multidisciplinary, Multiphase, Geotargeted Educational Initiative (P12-5.011)
To address diagnostic and treatment challenges to accessing equitable care for Rett syndrome (RTT) in “care deserts” (where RTT care is sparse) through continuing medical education.
Authors
- Amitha Ananth (ORCID: https://orcid.org/0000-0002-9671-2883)
- David A. Lieberman (ORCID: https://orcid.org/0000-0002-1073-5401)
- Dallas Armstrong (ORCID: https://orcid.org/0000-0002-8395-5587)
- Vandana Gupta (ORCID: https://orcid.org/0000-0002-7705-8150)
- Theresa E. Bartolotta (ORCID: https://orcid.org/0000-0003-2730-0815)
- Henrietta Hasson
- Karen Keough (ORCID: https://orcid.org/0009-0006-3585-5529)
- Carole Drexel
Institutions
- Stimson Center (US)
- Thomas Jefferson University (US)
- University of Alabama at Birmingham (US)
- Pediatric Nephrology of Alabama (US)
- Texas Neurology (US)
- Boston Children's Museum (US)
- Complejo Hospitalario de Pontevedra (ES)
Publication Details
- Journal
- Neurology
- Published
- 2025-04-07
- DOI
- https://doi.org/10.1212/wnl.0000000000211467
- Primary Topic
- Family and Disability Support Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00