A Novel International Patient Registry in Myasthenia Gravis Linking Clinical and Patient-reported Outcomes Data: The Vitaccess Real MG (VRMG) Registry (P6-11.034)
To design a global patient registry (“Vitaccess Real MG”) to optimally quantify the impacts of disease and treatment on patients living with myasthenia gravis (MG) using electronic medical record (EMR) and patient-reported outcome (PRO) data.
Authors
- Fatemeh Amini (ORCID: https://orcid.org/0000-0002-0493-3276)
- Francesco Saccà (ORCID: https://orcid.org/0000-0002-1323-6317)
- Saiju Jacob (ORCID: https://orcid.org/0000-0003-0037-454X)
- Anna Scowcroft (ORCID: https://orcid.org/0000-0002-4727-9243)
- Alasdair Fellows
- R Beau Lejdstrom
- Tsitsi Penduka
- Amanda Hayes
- Ali A. Habib (ORCID: https://orcid.org/0000-0003-3432-9747)
- Mark Larkin (ORCID: https://orcid.org/0000-0003-3241-8711)
- Jack Lawrence
- Géraldine Hall
- Nataša Savić
- Sally-Anne Vincent
Institutions
- University of California, Irvine (US)
- Federico II University Hospital (IT)
- Muscular Dystrophy UK (GB)
Publication Details
- Journal
- Neurology
- Published
- 2025-04-07
- DOI
- https://doi.org/10.1212/wnl.0000000000208982
- Primary Topic
- Myasthenia Gravis and Thymoma
- Type
- article
- Field-Weighted Citation Impact
- 0.00