Leveraging the Direct-to-Participant FTD Disorders Registry (FTDDR) to Enable Research on FTD Disorders (P11-3.008)

Describe implementation of direct-to-participant registry for FTD disorders and outline opportunities for neurology-based clinicians, researchers, and disease advocates.

Authors

Mary Krause
Sweatha Reddy
Lakecia Vincent
Penny A. Dacks (ORCID: https://orcid.org/0000-0003-1149-4192)
Carrie Milliard

Institutions

Association for Frontotemporal Degeneration (US)

Publication Details

Journal: Neurology
Published: 2025-04-07
DOI: https://doi.org/10.1212/wnl.0000000000211817
Primary Topic: Voice and Speech Disorders
Type: article
Field-Weighted Citation Impact: 0.00

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article

Leveraging the Direct-to-Participant FTD Disorders Registry (FTDDR) to Enable Research on FTD Disorders (P11-3.008)

Mary Krause, Sweatha Reddy, Lakecia Vincent, Penny A. Dacks et al.

Apr 7, 2025

Neurology

Voice and Speech Disorders

article

Leveraging the Direct-to-Participant FTD Disorders Registry (FTDDR) to Enable Research on FTD Disorders (P11-3.008)

Mary Krause, Sweatha Reddy, Lakecia Vincent, Penny A. Dacks, Carrie Milliard

April 7, 2025article en

Abstract

Describe implementation of direct-to-participant registry for FTD disorders and outline opportunities for neurology-based clinicians, researchers, and disease advocates.

NeurologyVol. 104(7_Supplement_1)

Association for Frontotemporal Degeneration (US)

Partnerships for the goals

Openalex Percentile: Top 91%

Voice and Speech Disorders

DOI Source OpenAlex

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Leveraging the Direct-to-Participant FTD Disorders Registry (FTDDR) to Enable Research on FTD Disorders (P11-3.008) — Mary Krause, Sweatha Reddy, et al. · Neurology (2025) | TGRS Research Map | TGRS