Real-World Use of Fenfluramine for Dravet Syndrome: a Retrospective Cohort Study Using a National Pharmacy Database (P12-9.002)

This study describes mortality rates and real-world use of fenfluramine (FFA) in United States (US) patients with Dravet syndrome (DS) who were new FFA users, obtained from a single specialty pharmacy.

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Publication Details

Journal
Neurology
Published
2025-04-07
DOI
https://doi.org/10.1212/wnl.0000000000210591
Primary Topic
Epilepsy research and treatment
Type
article
Field-Weighted Citation Impact
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article

Real-World Use of Fenfluramine for Dravet Syndrome: a Retrospective Cohort Study Using a National Pharmacy Database (P12-9.002)

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Neurology
Epilepsy research and treatment
article

Real-World Use of Fenfluramine for Dravet Syndrome: a Retrospective Cohort Study Using a National Pharmacy Database (P12-9.002)

Judith Helen Cross, Orrin Devinsky, Michael Rañopa, Renzo Guerrini, Wesley T. Kerr, Sylvain Rheims, Elizabeth Donner, Jeffrey L. Noebels, Philippe Ryvlin, António Gil‐Nagel, Ingrid Eileen Scheffer, Jenna Roberts, Samden D. Lhatoo, Elaine C. Wirrell, Lieven G. Lagae, Amélie Lothe, Joseph Sullivan, Milena Tryfon
article en

Abstract

This study describes mortality rates and real-world use of fenfluramine (FFA) in United States (US) patients with Dravet syndrome (DS) who were new FFA users, obtained from a single specialty pharmacy.

NeurologyVol. 104(7_Supplement_1)
Université Claude Bernard Lyon 1 (FR), Royal Children's Hospital (AU), University of Pittsburgh (US), University of California, San Francisco (US), Baylor College of Medicine (US), University of Toronto (CA), Great Ormond Street Hospital (GB), Hospital for Sick Children (CA), NYU Langone Health (US), Hospices Civils de Lyon (FR), Meyer Children's Hospital (IL), Mayo Clinic in Arizona (US), UCSF Benioff Children's Hospital (US), SickKids Foundation (CA), ERN GUARD-Heart (NL), Murdoch Children's Research Institute (AU), Hospital Ruber Internacional (ES), University College London (GB), The University of Texas Health Science Center at Houston (US), University of Lausanne (CH), KU Leuven (BE)
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Openalex Percentile: Top 92%
Epilepsy research and treatment
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