Person-Centered Care and Trial Design for Progressive Supranuclear Palsy: A Collaborative Project of AFTD and CurePSP (P8-3.020)
To investigate how the lived experiences of people with progressive supranuclear palsy (PSP) can inform strategies for early and accurate diagnosis, effective interventions, and person-centered clinical trial designs.
Authors
- Julio Rojas-Martinez
- Lawren VandeVrede (ORCID: https://orcid.org/0000-0002-8304-6711)
- Farwa Ali (ORCID: https://orcid.org/0000-0001-6060-3995)
- Jessica Shurer (ORCID: https://orcid.org/0009-0003-2755-2200)
- Chi-Ying R. Lin (ORCID: https://orcid.org/0000-0002-6418-8474)
- Penny A. Dacks (ORCID: https://orcid.org/0000-0003-1149-4192)
- Shana Dodge (ORCID: https://orcid.org/0000-0002-0459-9511)
- Anne‐Marie Wills (ORCID: https://orcid.org/0000-0002-0901-4711)
- Catherine Wang
- Sarah Kremen (ORCID: https://orcid.org/0000-0003-2593-0602)
- David J. Irwin (ORCID: https://orcid.org/0000-0002-5599-5098)
- Kristophe Diaz
Institutions
- Cedars-Sinai Medical Center (US)
- Baylor College of Medicine (US)
- WinnMed (US)
- California University of Pennsylvania (US)
- CurePSP (US)
- Universidad Católica de Santa Fe (AR)
- Marion General Hospital (US)
- Association for Frontotemporal Degeneration (US)
Publication Details
- Journal
- Neurology
- Published
- 2025-04-07
- DOI
- https://doi.org/10.1212/wnl.0000000000210658
- Primary Topic
- Parkinson's Disease Mechanisms and Treatments
- Type
- article
- Field-Weighted Citation Impact
- 0.00