Caregiver perceptions of housing–related social risks and pediatric asthma morbidity: A qualitative study
health practitioners require further guidance to ensure effective screening and avoid potential harm.Objective: Identify the impact of transportation insecurity across the transplant cascade (referral, evaluation, wait listing, activation, and transplant) and opportunities to utilize social risk screening and interventions to improve access and equity to kidney transplantation without causing harm.Methods: Qualitative interviews with 49 patients with endstage kidney disease (ESKD) treated with in-center hemodialysis and 29 dialysis staff focused on the role of social risk on kidney health.Results: Patients with ESKD treated with in-center hemodialysis face layered social risk.Existing systems and staff within dialysis centers lack training and skills to robustly identify and address these risks.As a result, patients facing social risk are not viewed as "good" transplant candidates, creating a cycle of limited access to kidney transplantation for these individuals.Conclusion: Without training and support to screen and address social risks in the ESKD population, health policy decisions promoting social risk screening may exacerbate inequities.Coordinated efforts are needed to better target screening and develop interventions that ethically collect social risk data to support patients to gain comprehensive kidney care.
Authors
- Janet A. Phoenix (ORCID: https://orcid.org/0000-0002-0999-2443)
- Shayla Stringfield
- Shilpa J. Patel (ORCID: https://orcid.org/0000-0002-9287-1430)
- Jordan Tyris (ORCID: https://orcid.org/0000-0003-4367-0031)
- Jenny Ren
- Rachel Margolis (ORCID: https://orcid.org/0000-0001-6554-0196)
- Kavita Parikh
Institutions
- Milken Institute (US)
- Children's National (US)
- George Washington University (US)
Publication Details
- Journal
- Health Services Research
- Published
- 2025-04-01
- DOI
- https://doi.org/10.1111/1475-6773.14567
- Primary Topic
- Pediatric health and respiratory diseases
- Type
- article
- Field-Weighted Citation Impact
- 0.00