BEAT-CF (Bayesian Evidence Adaptive Treatment for people with Cystic Fibrosis): description of a prospective cohort for nested studies in cystic fibrosis
We have established a contemporary cohort of pwCF with granular clinical and treatment data for PEx. This cohort will enable future nested studies focused on PEx management and other aspects of CF care. Understanding the baseline characteristics of these participants, as presented here, is critical for interpreting subsequent outcomes and for identifying factors that may influence disease progression and response to therapies.
Authors
- Tom Snelling (ORCID: https://orcid.org/0000-0003-4670-0638)
- Hiran Selvadurai
- Nathan Ward (ORCID: https://orcid.org/0000-0001-8894-7087)
- Edward Pan (ORCID: https://orcid.org/0000-0002-2676-1639)
- Sheila Sivam (ORCID: https://orcid.org/0000-0002-7024-5543)
- Charlie McLeod (ORCID: https://orcid.org/0000-0002-3197-7493)
- Parveen Fathima (ORCID: https://orcid.org/0000-0002-4516-4127)
- Adam Jaffé (ORCID: https://orcid.org/0000-0002-1963-5415)
- Nelly Newall (ORCID: https://orcid.org/0000-0002-4089-3558)
- André Schultz (ORCID: https://orcid.org/0000-0002-2000-8910)
- Julie Marsh (ORCID: https://orcid.org/0000-0001-8984-6907)
- Shivanthan Shanthikumar (ORCID: https://orcid.org/0000-0001-6000-3180)
- Andrew Tai (ORCID: https://orcid.org/0000-0001-9240-5416)
- Tracey Meares
Institutions
- The University of Sydney (AU)
- Royal Adelaide Hospital (AU)
- Royal Children's Hospital (AU)
- The Kids Research Institute Australia (AU)
- Royal Prince Alfred Hospital (AU)
- Princess Margaret Hospital for Children (AU)
- Women's and Children's Hospital (AU)
- Children's Hospital at Westmead (AU)
- Sydney Children's Hospital (AU)
- The University of Adelaide (AU)
Publication Details
- Journal
- Respiratory Medicine
- Published
- 2025-04-04
- DOI
- https://doi.org/10.1016/j.rmed.2025.108080
- Citations
- 1
- Primary Topic
- Cystic Fibrosis Research Advances
- Type
- article
- Field-Weighted Citation Impact
- 1.52