Health system-led early consent and direct contact of at-risk relatives: Pilot study results
A direct contact program was acceptable, reached at-risk relatives, and communicated proband test results. Direct contact with early consent of relatives holds promise for future research.
Authors
- Kathleen A. Leppig (ORCID: https://orcid.org/0000-0002-8678-6221)
- Stephanie M. Fullerton (ORCID: https://orcid.org/0000-0002-0938-6048)
- Paula R. Blasi (ORCID: https://orcid.org/0000-0002-7094-706X)
- James D. Ralston (ORCID: https://orcid.org/0000-0001-6317-7987)
- Melissa Anderson (ORCID: https://orcid.org/0000-0003-3886-1394)
- Nora B. Henrikson (ORCID: https://orcid.org/0000-0002-3459-7787)
- Jamilyn M. Zepp (ORCID: https://orcid.org/0000-0002-7240-2151)
- John J. Ewing
- Aaron Scrol
- Jane Grafton
Institutions
- Kaiser Permanente Washington Health Research Institute (US)
- University of Washington (US)
- University of Washington Medical Center (US)
- Kaiser Permanente Center for Health Research (US)
Publication Details
- Journal
- Public Health Genomics
- Published
- 2025-04-03
- DOI
- https://doi.org/10.1159/000545404
- Primary Topic
- BRCA gene mutations in cancer
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Kaiser Permanente