Parental perspectives on family‐centered care in pediatric neurology: An explanatory sequential mixed‐methods study
This study demonstrates the need to improve FCC (providing general and specific information about the child's condition) and to encourage partnerships between parents and healthcare providers. Involving genetic counsellors in care teams facilitates information sharing, shared decision-making, communication, and the provision of support resources.
Authors
- Ege Sarikaya (ORCID: https://orcid.org/0009-0006-8433-1190)
- Courtney B. Cook (ORCID: https://orcid.org/0000-0003-0864-2158)
- Kathryn A. Selby (ORCID: https://orcid.org/0000-0001-9239-1704)
- Ye Shen (ORCID: https://orcid.org/0000-0002-0413-6218)
Institutions
- University of British Columbia (CA)
- Lackland Independent School District (US)
- Women's Health Research Institute (CA)
- BC Children's Hospital (CA)
Publication Details
- Journal
- Developmental Medicine & Child Neurology
- Published
- 2025-04-01
- DOI
- https://doi.org/10.1111/dmcn.16275
- Citations
- 1
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 3.49
Funders
- Genome Canada
- Canadian Institutes of Health Research