Understanding symptom clusters, diagnosis and healthcare experiences in myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a cross-sectional survey in the UK
ME/CFS and long COVID share overlapping but distinct symptom clusters, indicating common challenges in management. The findings highlight significant delays in diagnosis and low satisfaction with specialist services, suggesting a need for improved self-management resources and better-coordinated care across the NHS.
Authors
- Helen Dawes (ORCID: https://orcid.org/0000-0002-2933-5213)
- Thomas B. Richards (ORCID: https://orcid.org/0000-0003-4688-1459)
- Maedeh Mansoubi (ORCID: https://orcid.org/0000-0002-8829-2217)
- Russell P. Fleming
- Phaedra Leveridge (ORCID: https://orcid.org/0000-0002-3602-2231)
- Charles Shepherd
- Martine Ainsworth-Wells
Institutions
- University of Exeter (GB)
- ME Association (GB)
- Association for Clinical Biochemistry and Laboratory Medicine (GB)
- NIHR Exeter Clinical Research Facility (GB)
Publication Details
- Journal
- BMJ Open
- Published
- 2025-04-01
- DOI
- https://doi.org/10.1136/bmjopen-2024-094658
- Citations
- 4
- Primary Topic
- Fibromyalgia and Chronic Fatigue Syndrome Research
- Type
- article
- Field-Weighted Citation Impact
- 5.88
Funders
- ME Association