Living alone with dementia: Supportive care for dementia, a replicable model for support and lessons learned

IntroductionCurrent support programs for individuals with dementia focus primarily on patients living with caregivers. Research on individuals with dementia living alone is sparse, with small sample sizes. This report describes data collected from the Supportive Care for Dementia program. The program's goals are to provide support services that allow the person to remain in their residence, increase involvement and decrease the stress experienced by family members, reduce neurobehavioral disturbances, reduce hospitalizations and emergency room visits and related costs, and facilitate placement or caregiving support when appropriate.MethodsThe data were collected from 300 patients enrolled in the Supportive Care for Dementia program. Measurements included patient behaviors, distant caregiver stress, hospitalizations and emergency room visits, and provided services.ResultsProgram participation was associated with positive outcomes, including decreased emergency room visits, decreased distant caregiver stress, and increased supportive services and familial engagement. Demographic data including racial and ethnic differences are discussed.DiscussionThe Supportive Care for Dementia program is a replicable program with demonstrated positive outcomes for individuals with dementia living alone.

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Publication Details

Journal
Dementia
Published
2025-04-02
DOI
https://doi.org/10.1177/14713012251332350
Primary Topic
Dementia and Cognitive Impairment Research
Type
article
Field-Weighted Citation Impact
0.00

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article

Living alone with dementia: Supportive care for dementia, a replicable model for support and lessons learned

Elizabeth Best, Kylee Volk, Tamiko Azuma, Sara Crance et al.
Dementia
Dementia and Cognitive Impairment Research
article

Living alone with dementia: Supportive care for dementia, a replicable model for support and lessons learned

Elizabeth Best, Kylee Volk, Tamiko Azuma, Sara Crance, Gillian Hamilton
article en

Abstract

IntroductionCurrent support programs for individuals with dementia focus primarily on patients living with caregivers. Research on individuals with dementia living alone is sparse, with small sample sizes. This report describes data collected from the Supportive Care for Dementia program. The program's goals are to provide support services that allow the person to remain in their residence, increase involvement and decrease the stress experienced by family members, reduce neurobehavioral disturbances, reduce hospitalizations and emergency room visits and related costs, and facilitate placement or caregiving support when appropriate.MethodsThe data were collected from 300 patients enrolled in the Supportive Care for Dementia program. Measurements included patient behaviors, distant caregiver stress, hospitalizations and emergency room visits, and provided services.ResultsProgram participation was associated with positive outcomes, including decreased emergency room visits, decreased distant caregiver stress, and increased supportive services and familial engagement. Demographic data including racial and ethnic differences are discussed.DiscussionThe Supportive Care for Dementia program is a replicable program with demonstrated positive outcomes for individuals with dementia living alone.

DementiaVol. 25(2)
University Health Care System (US), Dementia UK (GB), Arizona State University (US)
Administration for Community Living
Openalex Percentile: Top 92%
Dementia and Cognitive Impairment Research
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