Clinical trials and young adults with inflammatory bowel disease

Young adults (approximately 18-35 years) with inflammatory bowel disease (IBD) represent a distinct demographic with unique developmental and physiological characteristics, yet they are underrepresented in clinical trials. This commentary synthesizes insights from a roundtable discussion facilitated by the Crohn's and Colitis Young Adults Network (CCYAN) between young adult patients with IBD and medical professionals, including physicians, nurses, psychologists, and trainees/medical students. Themes include defining young adults as a distinct demographic in research, improving outcomes for young adults with IBD through age-specific data disaggregation, barriers for participation and post-trial responsibilities, as well as regulatory and legislative policy opportunities to enhance young adult representation in clinical trials.

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Publication Details

Journal
Health Care Transitions
Published
2025-01-01
DOI
https://doi.org/10.1016/j.hctj.2025.100100
Citations
1
Primary Topic
Inflammatory Bowel Disease
Type
article
Field-Weighted Citation Impact
1.82

Funders

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article en
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Abstract

Young adults (approximately 18-35 years) with inflammatory bowel disease (IBD) represent a distinct demographic with unique developmental and physiological characteristics, yet they are underrepresented in clinical trials. This commentary synthesizes insights from a roundtable discussion facilitated by the Crohn's and Colitis Young Adults Network (CCYAN) between young adult patients with IBD and medical professionals, including physicians, nurses, psychologists, and trainees/medical students. Themes include defining young adults as a distinct demographic in research, improving outcomes for young adults with IBD through age-specific data disaggregation, barriers for participation and post-trial responsibilities, as well as regulatory and legislative policy opportunities to enhance young adult representation in clinical trials.

Health Care TransitionsVol. 3
Boston Children's Hospital (US), Virginia Department of Health (US), University of Miami (US), University of Toronto (CA), University of Michigan (US), Cleveland Clinic Lerner College of Medicine (US), NYU Langone Health (US), Improvement Service (GB), Sage Therapeutics (United States) (US), C. S. Mott Children's Hospital (US), Case Western Reserve University (US), Icahn School of Medicine at Mount Sinai (US)
Leona M. and Harry B. Helmsley Charitable Trust
Good health and well-being
Openalex Percentile: Top 17%
Inflammatory Bowel Disease
1.82
DOIOpen Access PDFOpenAlex
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