Impact of Cheiloplasty and Palatoplasty on the Quality of Life of Children With Cleft Lip and Palate

<i>Objective</i>To assess the quality of life of parents of patients with cleft lip and/or palate (CL/P) undergoing cheiloplasty or palatoplasty in the pre and/or postoperative periods.<i>Design</i>This is a mixed method study. The sample consisted of parents/guardians of non-syndromic patients with CL/P undergoing treatment in the University Hospital of Western Paraná in Brazil. Data were collected from February 2022 to December 2023 and included demographic information, the Impact on Family Scale (33 items) to assess quality of life, and semi-structured interviews, followed by content analysis.<i>Results</i>Caregivers' (N = 116) quality of life was generally in the middle to high range and similar across pre and postoperative time points. The most frequent topics identified in interviews were financial difficulties, time required for childcare, esthetic concerns, feeding, phonation, and integration of children into social environments with improvements reported after surgeries.<i>Conclusion</i>Quality of life of caregivers was similar across pre and postoperative periods and content analysis highlighted improvements in psychosocial and functional aspects. Early follow-up with specialized services is recommended to improve the quality of life of caregivers of children with CL/P.

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Publication Details

Journal
The Cleft Palate-Craniofacial Journal
Published
2025-04-01
DOI
https://doi.org/10.1177/10556656251328089
Primary Topic
Cleft Lip and Palate Research
Type
article
Field-Weighted Citation Impact
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article

Impact of Cheiloplasty and Palatoplasty on the Quality of Life of Children With Cleft Lip and Palate

Gabriela Bohneberger, Natasha Magro Érnica
The Cleft Palate-Craniofacial Journal
Cleft Lip and Palate Research
article

Impact of Cheiloplasty and Palatoplasty on the Quality of Life of Children With Cleft Lip and Palate

Gabriela Bohneberger, Natasha Magro Érnica
article en

Abstract

<i>Objective</i>To assess the quality of life of parents of patients with cleft lip and/or palate (CL/P) undergoing cheiloplasty or palatoplasty in the pre and/or postoperative periods.<i>Design</i>This is a mixed method study. The sample consisted of parents/guardians of non-syndromic patients with CL/P undergoing treatment in the University Hospital of Western Paraná in Brazil. Data were collected from February 2022 to December 2023 and included demographic information, the Impact on Family Scale (33 items) to assess quality of life, and semi-structured interviews, followed by content analysis.<i>Results</i>Caregivers' (N = 116) quality of life was generally in the middle to high range and similar across pre and postoperative time points. The most frequent topics identified in interviews were financial difficulties, time required for childcare, esthetic concerns, feeding, phonation, and integration of children into social environments with improvements reported after surgeries.<i>Conclusion</i>Quality of life of caregivers was similar across pre and postoperative periods and content analysis highlighted improvements in psychosocial and functional aspects. Early follow-up with specialized services is recommended to improve the quality of life of caregivers of children with CL/P.

The Cleft Palate-Craniofacial Journal
Universidade Estadual do Oeste do Paraná (BR), Universidade Estadual do Paraná (BR)
Openalex Percentile: Top 92%
Cleft Lip and Palate Research
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