Capturing the human impact of living with multiple long-term conditions in routine electronic health records – lost in translation?
While EHR data captures some aspects of MLTC work, patient-centred concepts are under-represented. Future research should explore reasons behind variability in coding practices, and innovative methods for enriching structured records with patient-centred data.
Authors
- Nick Francis (ORCID: https://orcid.org/0000-0001-8939-7312)
- Robin Poole (ORCID: https://orcid.org/0000-0002-3113-5202)
- Sara Macdonald (ORCID: https://orcid.org/0000-0002-5380-6943)
- Roberta Chiovoloni
- Ashley Akbari (ORCID: https://orcid.org/0000-0003-0814-0801)
- Frances S Mair (ORCID: https://orcid.org/0000-0001-9780-1135)
- Nisreen A Alwan (ORCID: https://orcid.org/0000-0002-4134-8463)
- Jakub Dylag (ORCID: https://orcid.org/0000-0001-6263-7339)
- Rebecca B. Hoyle (ORCID: https://orcid.org/0000-0002-1645-1071)
- Sebastian Stannard (ORCID: https://orcid.org/0000-0002-6139-1020)
- Lynn Laidlaw (ORCID: https://orcid.org/0000-0001-6688-6658)
- Mark J. Ashworth (ORCID: https://orcid.org/0000-0001-6514-9904)
- Alex Dregan (ORCID: https://orcid.org/0000-0002-7620-4902)
- Mozhdeh Shiranirad (ORCID: https://orcid.org/0000-0003-4346-3059)
- Emilia Holland (ORCID: https://orcid.org/0000-0001-5722-3836)
- Michael Boniface (ORCID: https://orcid.org/0000-0002-9281-6095)
- Nic Fair
- Simon Fraser (ORCID: https://orcid.org/0000-0002-4172-4406)
Institutions
- King's College London (GB)
- University Hospital Southampton NHS Foundation Trust (GB)
- Swansea University (GB)
- Middle East Liver Disease Center (IR)
- Southampton City Council (GB)
- NIHR Research Delivery Network (GB)
- University of Southampton (GB)
- NIHR Applied Research Collaboration West (GB)
- University of Glasgow (GB)
Publication Details
- Journal
- Journal of Multimorbidity and Comorbidity
- Published
- 2025-04-01
- DOI
- https://doi.org/10.1177/26335565251329869
- Citations
- 1
- Primary Topic
- Chronic Disease Management Strategies
- Type
- article
- Field-Weighted Citation Impact
- 1.35
Funders
- National Institute for Health and Care Research