Experience of linking to the NHS diabetic eye screening programme records in the ASCEND-eye randomized trial and recommendations for improvement
Routinely collected healthcare data is a valuable source of outcome measure information in clinical trials. However, researchers frequently face barriers to accessing these datasets despite having written informed consent from trial participants to do so. We hope to encourage more NHS DESPs to take part in research.
Authors
- Jane Armitage (ORCID: https://orcid.org/0000-0001-8691-9226)
- Emily Sammons (ORCID: https://orcid.org/0000-0002-8647-0366)
- Louise Bowman (ORCID: https://orcid.org/0000-0003-1125-8616)
- Marion Mafham (ORCID: https://orcid.org/0000-0003-0562-3963)
Institutions
- University of Oxford (GB)
- Health Data Research UK (GB)
Publication Details
- Journal
- Contemporary Clinical Trials Communications
- Published
- 2025-04-01
- DOI
- https://doi.org/10.1016/j.conctc.2025.101474
- Primary Topic
- Glaucoma and retinal disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Macular Society
- Cancer Research UK
- British Heart Foundation
- Medical Research Council