Mapping of Children’s Palliative Care Development Globally in 2023

<b>Background:</b> The demand for children's palliative care is increasingly urgent, with over 21 million children worldwide needing access, yet only 5-10% currently receiving it. Mapping the development of children's palliative care is important in tracking progress and focusing priorities for future work. <b>Methods:</b> In 2023, a cross-sectional survey was conducted to assess the status of children's palliative care globally, focusing on eight key indicators. Children's palliative care experts and stakeholders were asked to evaluate the perceived levels of development in their countries across five defined levels, ranging from no known provision to broad integration into health care services. Efforts were made to engage non-responding countries. Regional palliative care associations were consulted to validate the results. <b>Results:</b> The survey was distributed to experts in 167/197 countries (85%), achieving data collection for 131 countries (78% of surveys sent). A total of 42% of countries (83) were at the lowest level of development (Level 1), while only 6% (11) of countries reached the highest level (Level 5), showing significant regional variation. An overall increase in children's palliative care globally was seen, including significant movement between levels. Variations were seen between regions and across country income categories, providing insight to inform ongoing efforts in service development, advocacy, education, research and access to essential medicines. <b>Conclusions:</b> There has been global progress in children's palliative care, although substantial gaps remain in access, particularly between high-income countries and low- and middle-income countries (LMICs). The study highlights the importance of a comprehensive approach to children's palliative care, with advocacy and education and training programmes being crucial for sustainable development.

Authors

Institutions

Publication Details

Journal
Children
Published
2025-03-30
DOI
https://doi.org/10.3390/children12040440
Citations
5
Primary Topic
Childhood Cancer Survivors' Quality of Life
Type
article
Field-Weighted Citation Impact
17.47
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

Mapping of Children’s Palliative Care Development Globally in 2023

Ednin Hamzah, Justin Nathaniel Baker, Lizzie Chambers, Emmanuel B. K. Luyirika et al.
5 citations
Children
Childhood Cancer Survivors' Quality of Life
17.47
article

Mapping of Children’s Palliative Care Development Globally in 2023

Ednin Hamzah, Justin Nathaniel Baker, Lizzie Chambers, Emmanuel B. K. Luyirika, Regina Okhuysen‐Cawley, Julie Ling, Alex Daniels, Julia D Downing, Megan Doherty
article en
5 citations

Abstract

<b>Background:</b> The demand for children's palliative care is increasingly urgent, with over 21 million children worldwide needing access, yet only 5-10% currently receiving it. Mapping the development of children's palliative care is important in tracking progress and focusing priorities for future work. <b>Methods:</b> In 2023, a cross-sectional survey was conducted to assess the status of children's palliative care globally, focusing on eight key indicators. Children's palliative care experts and stakeholders were asked to evaluate the perceived levels of development in their countries across five defined levels, ranging from no known provision to broad integration into health care services. Efforts were made to engage non-responding countries. Regional palliative care associations were consulted to validate the results. <b>Results:</b> The survey was distributed to experts in 167/197 countries (85%), achieving data collection for 131 countries (78% of surveys sent). A total of 42% of countries (83) were at the lowest level of development (Level 1), while only 6% (11) of countries reached the highest level (Level 5), showing significant regional variation. An overall increase in children's palliative care globally was seen, including significant movement between levels. Variations were seen between regions and across country income categories, providing insight to inform ongoing efforts in service development, advocacy, education, research and access to essential medicines. <b>Conclusions:</b> There has been global progress in children's palliative care, although substantial gaps remain in access, particularly between high-income countries and low- and middle-income countries (LMICs). The study highlights the importance of a comprehensive approach to children's palliative care, with advocacy and education and training programmes being crucial for sustainable development.

ChildrenVol. 12(4)
African Palliative Care Association (UG), Stanford Medicine (US), European Association for Palliative Care (BE), Colombian Association of Surgery (CO), Stanford University (US)
Openalex Percentile: Top 1%
Childhood Cancer Survivors' Quality of Life
17.47
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.