Discrepancies in perceptions of well-being: comparing parental and pediatric PROMIS-patient-reported outcomes in Crohn’s disease
This study highlights the importance of integrating patient and parental perspectives in the clinical management of pediatric CD. The observed discrepancies in disease-related perceptions, influenced by parental educational and professional background, underscore the need for comprehensive assessments to ensure accurate, patient-centered care. For broader generalization, further research should explore these dynamics in newly diagnosed and hospitalized patients.
Authors
- Paulo Nogueira (ORCID: https://orcid.org/0000-0001-8316-5035)
- Maria Miguel Oliveira (ORCID: https://orcid.org/0009-0007-9160-0157)
- Ana Isabel Lopes
- Sara Azevedo (ORCID: https://orcid.org/0000-0002-3168-5917)
Institutions
- University of Lisbon (PT)
- Administração Regional de Saúde de Lisboa e Vale do Tejo (PT)
- Escola Superior de Enfermagem da Universidade de Lisboa (PT)
- Instituto de Saúde (BR)
- Hospital de Santa Maria (PT)
Publication Details
- Journal
- Journal of Patient-Reported Outcomes
- Published
- 2025-03-28
- DOI
- https://doi.org/10.1186/s41687-025-00870-9
- Citations
- 2
- Primary Topic
- Inflammatory Bowel Disease
- Type
- article
- Field-Weighted Citation Impact
- 3.63