Perspectives and experiences of parents of children with juvenile dermatomyositis: a semi-structured interview study
The diagnosis of JDM is often delayed and caregivers of children with JDM report distress, disruption and uncertainty throughout their treatment journey with their child. Addressing these fears and establishing support mechanisms that help parents navigate their way through the medical system and support changing family dynamics are vital to optimise health outcomes for children diagnosed with JDM.
Authors
- Davinder Singh‐Grewal (ORCID: https://orcid.org/0000-0001-7306-3713)
- Ayano Kelly (ORCID: https://orcid.org/0000-0003-3325-3840)
- Allison Tong (ORCID: https://orcid.org/0000-0001-8973-9538)
- Amy Kelly (ORCID: https://orcid.org/0000-0002-7963-8159)
- Jeffrey Chaitow
Institutions
- Camden and Campbelltown Hospitals (AU)
- The University of Sydney (AU)
- New South Wales Department of Health (AU)
- Liverpool Hospital (AU)
- Children's Hospital at Westmead (AU)
- UNSW Sydney (AU)
- Ingham Institute (AU)
Publication Details
- Journal
- Pediatric Rheumatology
- Published
- 2025-03-28
- DOI
- https://doi.org/10.1186/s12969-025-01079-2
- Primary Topic
- Inflammatory Myopathies and Dermatomyositis
- Type
- article
- Field-Weighted Citation Impact
- 0.00