Pregnancy Experiences of Women With Intellectual and Developmental Disabilities

Today women with intellectual and developmental disabilities (IDD) are more likely than ever to live in the community and are increasingly likely to give birth. However, they are at increased risk of adverse maternal and infant outcomes. This qualitative study explored pregnancy care experiences of women with IDD. Semi-structured interviews were conducted in 2016-2017 with 16 mothers with IDD from the United States (analysis in 2020-2022). A content analysis approach revealed that perinatal care; social and economic factors; psychosocial factors; and environmental factors impacted pregnancy experiences. Some participants reported exceptional care. This study centers the voices and experiences of women with IDD in the United States. Findings demonstrate a need to improve care through clinician training and to develop accessible programs and services.