Parental and Young Adult Perspectives on Investigative Genomic Tumor Profiling in High‐Risk, Recurrent, or Rare Pediatric Cancers: A Qualitative Study
Participants favored partnership in decision-making, expressed trust in their providers, and recognized the value of research. Engaging parents and YA patients in the planning of precision medicine translational research may be a path to designing an integrated research and care model that maximizes translational research implemented in real time, leading to improved outcomes.
Authors
- Isabel Bjork
- Sheri L. Spunt (ORCID: https://orcid.org/0000-0002-1669-2676)
- Amy Li (ORCID: https://orcid.org/0000-0001-5413-3771)
- Kimberly A. Pyke‐Grimm (ORCID: https://orcid.org/0000-0001-6396-7460)
- Olena M. Vaske (ORCID: https://orcid.org/0000-0002-1677-417X)
Institutions
- University of California, Santa Cruz (US)
- Stanford Medicine (US)
- Stanford University (US)
Publication Details
- Journal
- Pediatric Blood & Cancer
- Published
- 2025-03-25
- DOI
- https://doi.org/10.1002/pbc.31667
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- American Association for Cancer Research
- St. Baldrick's Foundation
- School of Medicine, Stanford University