Engaging families, enhancing research: optimizing rehabilitation research through co-creation of a Family Engagement in Research Framework
The updated Framework and accompanying tools reflect the current state of the evidence on family engagement in research, in addition to the needs of the families and organizational context at HBKRH. The hope is that other organizations can learn from the steps taken to optimize family engagement in research.
Authors
- Kylie D. Mallory (ORCID: https://orcid.org/0009-0005-6608-378X)
- Amy C. McPherson (ORCID: https://orcid.org/0000-0003-4186-3200)
- Shannon E. Scratch (ORCID: https://orcid.org/0000-0001-9191-2571)
- Nadia Tanel
- Tom Chau (ORCID: https://orcid.org/0000-0002-7486-0316)
- Andrea Hickling (ORCID: https://orcid.org/0000-0001-6251-6369)
- Christine Provvidenza (ORCID: https://orcid.org/0000-0002-1741-239X)
- Clara Ho (ORCID: https://orcid.org/0000-0002-7278-4380)
- Suzanne Jorisch
- Manuela Comito
Institutions
- 3M (United States) (US)
- University of Toronto (CA)
- Toronto Rehabilitation Institute (CA)
- Holland Bloorview Kids Rehabilitation Hospital (CA)
Publication Details
- Journal
- Disability and Rehabilitation
- Published
- 2025-03-25
- DOI
- https://doi.org/10.1080/09638288.2025.2479657
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 0.00