255 The impact of a personal cancer diagnosis on adolescent and young adult cancer survivors’ social connectedness: A qualitative analysis
Objectives/Goals: This study’s objective was to explore how a personal cancer diagnosis impacts the social connectedness (i.e., quality, structure, and functions of social relationships) of adolescent/young adult cancer survivors (AYACS, patients diagnosed with cancer between 15 and 39 years old), to inform intervention development fostering social health. Methods/Study Population: In this qualitative study (part of larger study assessing AYACS’ psychosocial challenges), participants were 15–25 years old at the time of cancer diagnosis and within 6 years of cancer diagnosis. Participants (and consenting parents of participants 18 years old and older) had to have fluency in written and spoken English and access to a computer or smartphone. Qualitative interviewers utilized an interview guide to conduct individual participant interviews. Interviews were audio-recorded and transcribed verbatim. Thematic analysis was used to analyze data using a phenomenological approach to explore how a personal cancer diagnosis impacted social connectedness. Qualitative data related to social connectedness (corresponding to code “Relationships and Support”) are presented. Results/Anticipated Results: Three themes emerged through thematic analysis: (1) AYACS experience substantial heterogeneity related to social support needs; (2) AYACS leverage multiple relationships and resources when seeking support after a personal cancer diagnosis; (3) AYACS’ individual experiences were unique in that some noted positive changes, whereas others noted negative changes in relationships within social networks, specifically with peers. Discussion/Significance of Impact: AYACS experience various social support needs, and leverage multiple relationships when seeking social support. These translational findings create a foundation to develop AYACS social programming, foster peer relationships, and incorporate social science methods to aid intervention development to strengthen AYACS’ social connectedness.
Authors
- Heather Costigan (ORCID: https://orcid.org/0000-0002-2009-277X)
- Allison M. Scott (ORCID: https://orcid.org/0000-0002-4806-7912)
- Natthapol Songdej (ORCID: https://orcid.org/0000-0001-6545-7931)
- Laura M. Koehly (ORCID: https://orcid.org/0000-0003-4588-2898)
- Pooja Rao (ORCID: https://orcid.org/0000-0001-7968-3286)
- Kristin Bingen (ORCID: https://orcid.org/0000-0002-2481-2826)
- Kevin Rakszawski (ORCID: https://orcid.org/0000-0001-7441-9531)
- Emily Wasserman (ORCID: https://orcid.org/0000-0003-3700-8375)
- Joel E. Segel (ORCID: https://orcid.org/0000-0001-8937-0531)
- George F. Blackall
- Katie A. Devine (ORCID: https://orcid.org/0000-0002-1003-8905)
- Smita Dandekar (ORCID: https://orcid.org/0000-0001-9410-1248)
- Eugene J. Lengerich (ORCID: https://orcid.org/0000-0001-9872-1647)
- Lauren J. Van Scoy (ORCID: https://orcid.org/0000-0003-0984-1474)
- Monali Vasekar (ORCID: https://orcid.org/0000-0003-2369-8133)
- Seema Naik (ORCID: https://orcid.org/0000-0002-9859-151X)
- Ashton M. Verdery (ORCID: https://orcid.org/0000-0003-1005-7580)
- Courtney L Rumbaugh
Institutions
- Rutgers, The State University of New Jersey (US)
- National Institutes of Health (US)
- Pennsylvania State University (US)
- University of Kentucky (US)
- Medical College of Wisconsin (US)
- National Human Genome Research Institute (US)
- Penn State Milton S. Hershey Medical Center (US)
Publication Details
- Journal
- Journal of Clinical and Translational Science
- Published
- 2025-03-25
- DOI
- https://doi.org/10.1017/cts.2024.899
- Primary Topic
- Family Support in Illness
- Type
- article
- Field-Weighted Citation Impact
- 0.00