Structured care after a DSD diagnosis in childhood: a mixed methods evaluation of the Empower-DSD program
The structured, multidisciplinary support within the first weeks after a DSD diagnosis was perceived to be of high quality by all stakeholders involved. Information on the nature of the decision-making process and peer narratives could be added to the information material.
Authors
- Olaf Hiort (ORCID: https://orcid.org/0000-0001-7490-4983)
- Uta Neumann
- Ute Kalender (ORCID: https://orcid.org/0000-0001-6887-2954)
- Gerda Janssen-Schmidchen
- Annette Richter-Unruh
- Gloria Herrmann
- Sabine Wiegmann (ORCID: https://orcid.org/0000-0002-2668-4581)
- Thomas Keil (ORCID: https://orcid.org/0000-0002-9108-3360)
- Katja Wechsung (ORCID: https://orcid.org/0000-0001-5494-3328)
- Manuela Brösamle
- Martina Jürgensen (ORCID: https://orcid.org/0000-0002-9576-397X)
- Martin Wabitsch (ORCID: https://orcid.org/0000-0001-6795-8430)
- Louise Marshall (ORCID: https://orcid.org/0000-0003-2788-0311)
- Barbara Stöckigt
- Charlotte Wunn
Institutions
- University of Würzburg (DE)
- Humboldt-Universität zu Berlin (DE)
- St. Josefs Hospital (DE)
- St. Josef-Hospital (DE)
- University Hospital Ulm (DE)
- Freie Universität Berlin (DE)
- Charité - Universitätsmedizin Berlin (DE)
- Ruhr University Bochum (DE)
- University of Lübeck (DE)
Publication Details
- Journal
- Frontiers in Pediatrics
- Published
- 2025-03-24
- DOI
- https://doi.org/10.3389/fped.2025.1488411
- Citations
- 6
- Primary Topic
- Sexual Differentiation and Disorders
- Type
- article
- Field-Weighted Citation Impact
- 4.84
Funders
- Gemeinsame Bundesausschuss