Implementation of a Goals-of-Care Communication Priming Intervention Tailored to Outpatient Stroke Survivors: A Pilot Study
<b>Background:</b> Serious illness communication priming guides like the Jumpstart Guide can increase goals-of-care conversations (GOCC), but have not been evaluated in the stroke population. <b>Objectives:</b> To conduct a randomized pilot study evaluating feasibility and acceptability of the Jumpstart Guide adapted for outpatient stroke survivors, their surrogates, and clinicians. <b>Methods:</b> We recruited stroke survivors ≥60 years of age (or their surrogates if patients had communication barriers) at a single academically-affiliated stroke clinic. Patients/surrogates were randomized to intervention (patient/surrogate and clinician received pre-visit Jumpstart Guide) or control arms. We assessed feasibility of participant enrollment, survey completion and extraction of GOCC documentation. We assessed acceptability using patient/surrogate and clinician surveys. <b>Results:</b> We enrolled 15/24 (63%) of eligible patients or surrogates, 8 of which were randomized to the intervention vs 7 to the control arm. Six clinicians were enrolled for the 8 intervention encounters. Patient characteristics in both groups were similar with mean age 74.7 years, 10/15 male, 12/15 white, and 10/15 with acute ischemic stroke. Most patients/surrogates (7/8 intervention vs 7/7 control) and all intervention clinicians completed post-visit surveys. Most intervention participants reported successful pre-visit receipt of the Jumpstart Guide (6/7 patient/surrogates; 6/8 clinicians). Of these, all intervention patients/surrogates and 5/6 clinicians stated they would "definitely" or "probably" recommend it to others. Two intervention vs no control patients had newly documented GOCC post-visit. <b>Conclusions:</b> Implementation of a stroke-specific Jumpstart guide in an outpatient stroke clinic is feasible and acceptable. A large randomized controlled trial is needed to evaluate its efficacy in improving GOCC.
Authors
- Ruth A. Engelberg
- Claire J. Creutzfeldt (ORCID: https://orcid.org/0000-0003-1564-9999)
- Gigi Garzio
- Erin K. Kross (ORCID: https://orcid.org/0000-0002-8206-3050)
- Nauzley C. Abedini (ORCID: https://orcid.org/0000-0003-4949-1958)
Institutions
- University of Washington (US)
- Cambia Health Solutions (United States) (US)
Publication Details
- Journal
- American Journal of Hospice and Palliative Medicine®
- Published
- 2025-03-23
- DOI
- https://doi.org/10.1177/10499091251328949
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 0.00