A Survey of People Living with Narcolepsy in the USA: Path to Diagnosis, Quality of Life, and Treatment Landscape from the Patient’s Perspective
These survey findings further characterize the diagnostic delay, symptom burden, and treatment needs of PWN. Understanding the breadth of impact of narcolepsy from the patients' perspective could improve shared decision-making between PWN and their treating clinicians.
Authors
- Luis E. Ortiz (ORCID: https://orcid.org/0000-0003-4575-0000)
- Matthew Horsnell
- Anne Marie Morse (ORCID: https://orcid.org/0000-0003-4494-0195)
- Lois E. Krahn
- Maggie Lavender
- Beth Schneider
- Jennifer Gudeman (ORCID: https://orcid.org/0000-0002-7375-5020)
- Dianna Cronin
Institutions
- Geisinger Medical Center (US)
- University of Chester (GB)
- Johns Hopkins University (US)
- Johns Hopkins All Children's Hospital (US)
- Mayo Clinic Hospital (US)
- Comprehensive Cardiovascular (US)
- Geisinger Commonwealth School of Medicine (US)
Publication Details
- Journal
- CNS Drugs
- Published
- 2025-03-01
- DOI
- https://doi.org/10.1007/s40263-024-01142-8
- Citations
- 7
- Primary Topic
- Sleep and Wakefulness Research
- Type
- article
- Field-Weighted Citation Impact
- 10.02