Understanding Barriers and Facilitators for Ethnic Minority Groups to Audio Recording Recruitment Discussions in Clinical Trials: A Participatory Approach to Improving Informed Consent and Participation
To foster a co-creation process, this project included the active involvement of our PPIE collaborators and co-applicants 'Khaas' for funding. They also helped us reach contributors from the South Asian community (mainly of Pakistani and Bangladeshi origin) and arrange workshops. Our two PPIE contributors from Somali Resource Centre and Barton Hill Activity Club helped us reach the Somali community at the Wellspring Settlement. Similarly, the Chinese Community Wellbeing Society helped us reach people from the Chinese community. These PPIE partners also helped us run the workshop by providing live translation of discussion. They also helped translate video scripts and do voiceovers in videos. Also, PPIE contributors Tom Yardley and Amanda Roberts helped with the script development.
Authors
- Shoba Dawson (ORCID: https://orcid.org/0000-0002-6700-6445)
- Julia Wade (ORCID: https://orcid.org/0000-0001-6486-6477)
- J. Athene Lane (ORCID: https://orcid.org/0000-0002-7578-4925)
- Furrukh S. Malik (ORCID: https://orcid.org/0000-0002-1903-1080)
- Giles Birchley (ORCID: https://orcid.org/0000-0002-2973-2163)
- Saba Faisal (ORCID: https://orcid.org/0009-0005-5712-827X)
- Tom Yardley
Institutions
- At Bristol (GB)
- University of Bristol (GB)
- University of Sheffield (GB)
Publication Details
- Journal
- Health Expectations
- Published
- 2025-03-17
- DOI
- https://doi.org/10.1111/hex.70210
- Citations
- 2
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 3.76