Understanding Barriers and Facilitators for Ethnic Minority Groups to Audio Recording Recruitment Discussions in Clinical Trials: A Participatory Approach to Improving Informed Consent and Participation

To foster a co-creation process, this project included the active involvement of our PPIE collaborators and co-applicants 'Khaas' for funding. They also helped us reach contributors from the South Asian community (mainly of Pakistani and Bangladeshi origin) and arrange workshops. Our two PPIE contributors from Somali Resource Centre and Barton Hill Activity Club helped us reach the Somali community at the Wellspring Settlement. Similarly, the Chinese Community Wellbeing Society helped us reach people from the Chinese community. These PPIE partners also helped us run the workshop by providing live translation of discussion. They also helped translate video scripts and do voiceovers in videos. Also, PPIE contributors Tom Yardley and Amanda Roberts helped with the script development.

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Publication Details

Journal
Health Expectations
Published
2025-03-17
DOI
https://doi.org/10.1111/hex.70210
Citations
2
Primary Topic
Ethics in Clinical Research
Type
article
Field-Weighted Citation Impact
3.76
Controls
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article

Understanding Barriers and Facilitators for Ethnic Minority Groups to Audio Recording Recruitment Discussions in Clinical Trials: A Participatory Approach to Improving Informed Consent and Participation

Shoba Dawson, Julia Wade, J. Athene Lane, Furrukh S. Malik et al.
2 citations
Health Expectations
Ethics in Clinical Research
3.76
article

Understanding Barriers and Facilitators for Ethnic Minority Groups to Audio Recording Recruitment Discussions in Clinical Trials: A Participatory Approach to Improving Informed Consent and Participation

Shoba Dawson, Julia Wade, J. Athene Lane, Furrukh S. Malik, Giles Birchley, Saba Faisal, Tom Yardley
article en
2 citations

Abstract

To foster a co-creation process, this project included the active involvement of our PPIE collaborators and co-applicants 'Khaas' for funding. They also helped us reach contributors from the South Asian community (mainly of Pakistani and Bangladeshi origin) and arrange workshops. Our two PPIE contributors from Somali Resource Centre and Barton Hill Activity Club helped us reach the Somali community at the Wellspring Settlement. Similarly, the Chinese Community Wellbeing Society helped us reach people from the Chinese community. These PPIE partners also helped us run the workshop by providing live translation of discussion. They also helped translate video scripts and do voiceovers in videos. Also, PPIE contributors Tom Yardley and Amanda Roberts helped with the script development.

Health ExpectationsVol. 28(2)
At Bristol (GB), University of Bristol (GB), University of Sheffield (GB)
Quality Education
Openalex Percentile: Top 9%
Ethics in Clinical Research
3.76
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Understanding Barriers and Facilitators for Ethnic Minority Groups to Audio Recording Recruitment Discussions in Clinical Trials: A Participatory Approach to Improving Informed Consent and Participation — Shoba Dawson, Julia Wade, et al. · Health Expectations (2025) | TGRS Research Map | TGRS