136 Chronic respiratory disease breathe better outpatient group outcomes Marie curie hospice Bradford

<h3></h3> Chronic respiratory disease affects 454.6 million people globally and is the third leading cause of death worldwide.<sup>1 2</sup> it is associated with poor quality of life, increased use of healthcare and symptom burden.<sup>2–5</sup> At the Marie Curie Hospice Bradford Outpatient Unit we offer a Breathe Better Group (BBG), an 8 week exercise and education programme with multi-disciplinary input with the aim of improving symptom management and mastery for patients with chronic respiratory disease. The positive impact of this programme, was apparent through patient feedback however there was limited formal assessment of outcomes. We embarked on a quality improvement project to develop the service and introduce outcome assessment tools to measure the impact of the programme on patients. We initially used our routinely collected Assessment and Complexity Collaborative (OACC) data including Integrated Palliative Outcome Scale (IPOS) to measure the impact on patients. Patient’s IPOS scores were collected pre and post intervention, with no demonstration of significant improvement. We recognised that the IPOS was not assessing some of the specific intended outcomes for this patient group (ie symptom mastery) and proposed that use of the Chronic Respiratory Questionnaire(CRQ)<sup>6</sup> would be a more helpful tool for assessment of the specific intended outcomes of the Breathe Better Group. Of the 40 patients who have attended the Breathe Better group in the past 24 months, 22 completed the 8 week programme and completed pre and post intervention CRQs. Analysis of this data has shown that over 60% of patients had improvement in their fatigue levels, over 70% had improvement in their dyspnoea and emotional status, and over 80% of patients demonstrated improvement in their mastery of symptoms. Patient feedback remains positive with 100% patients finding the programme helpful, over 60% able to do more activities and 75% feeling more positive about the future. <h3>Reference</h3> GOLD guide 2024.Global initiative for chronic obstructive lung disease. 2024 report. Chronic obstructive pulmonary disease (COPD) (who.int) Momtazmanesh Sara, <i>et al</i>. Global burden of chronic respiratory diseases and risk factors, 1990–2019: an update from the Global Burden of Disease Study. <i>EclinicalMedicine</i> 2019;<b>59</b>: 101936. Roberts M, Smith T, Wheatley J, Cho JG. Symptom burden of patients with chronic obstructive pulmonary disease attending the westmead breathlessness service: prevalence, associations, and sex-related differences. <i>Int J Chron Obstruct Pulmon Dis</i> 2023;<b>18</b>:2825–2837. Joshi M, Joshi A, Bartter T. Symptom burden in chronic obstructive pulmonary disease and cancer. <i>Curr Opin Pulm Med</i> 2012;<b>18</b>(2):97–103. Chauvin, Rupley, Eason. Outcomes in cardiopulmonary physical therapy. Chronic Respiratory Disease Questionaire. <i>Cardiopulm phys therapy</i> 2008;<b>19</b>(2):61–67.

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Poster presentations
Published
2025-03-01
DOI
https://doi.org/10.1136/spcare-2025-pcc.154
Primary Topic
Chronic Disease Management Strategies
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article
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article

136 Chronic respiratory disease breathe better outpatient group outcomes Marie curie hospice Bradford

Michelle P. McCrone, Maria Cassidy, N J Dodd, C. Tordoff et al.
Poster presentations
Chronic Disease Management Strategies
article

136 Chronic respiratory disease breathe better outpatient group outcomes Marie curie hospice Bradford

Michelle P. McCrone, Maria Cassidy, N J Dodd, C. Tordoff, A.R.W. Forrest, J. Weldon
article en

Abstract

<h3></h3> Chronic respiratory disease affects 454.6 million people globally and is the third leading cause of death worldwide.<sup>1 2</sup> it is associated with poor quality of life, increased use of healthcare and symptom burden.<sup>2–5</sup> At the Marie Curie Hospice Bradford Outpatient Unit we offer a Breathe Better Group (BBG), an 8 week exercise and education programme with multi-disciplinary input with the aim of improving symptom management and mastery for patients with chronic respiratory disease. The positive impact of this programme, was apparent through patient feedback however there was limited formal assessment of outcomes. We embarked on a quality improvement project to develop the service and introduce outcome assessment tools to measure the impact of the programme on patients. We initially used our routinely collected Assessment and Complexity Collaborative (OACC) data including Integrated Palliative Outcome Scale (IPOS) to measure the impact on patients. Patient’s IPOS scores were collected pre and post intervention, with no demonstration of significant improvement. We recognised that the IPOS was not assessing some of the specific intended outcomes for this patient group (ie symptom mastery) and proposed that use of the Chronic Respiratory Questionnaire(CRQ)<sup>6</sup> would be a more helpful tool for assessment of the specific intended outcomes of the Breathe Better Group. Of the 40 patients who have attended the Breathe Better group in the past 24 months, 22 completed the 8 week programme and completed pre and post intervention CRQs. Analysis of this data has shown that over 60% of patients had improvement in their fatigue levels, over 70% had improvement in their dyspnoea and emotional status, and over 80% of patients demonstrated improvement in their mastery of symptoms. Patient feedback remains positive with 100% patients finding the programme helpful, over 60% able to do more activities and 75% feeling more positive about the future. <h3>Reference</h3> GOLD guide 2024.Global initiative for chronic obstructive lung disease. 2024 report. Chronic obstructive pulmonary disease (COPD) (who.int) Momtazmanesh Sara, <i>et al</i>. Global burden of chronic respiratory diseases and risk factors, 1990–2019: an update from the Global Burden of Disease Study. <i>EclinicalMedicine</i> 2019;<b>59</b>: 101936. Roberts M, Smith T, Wheatley J, Cho JG. Symptom burden of patients with chronic obstructive pulmonary disease attending the westmead breathlessness service: prevalence, associations, and sex-related differences. <i>Int J Chron Obstruct Pulmon Dis</i> 2023;<b>18</b>:2825–2837. Joshi M, Joshi A, Bartter T. Symptom burden in chronic obstructive pulmonary disease and cancer. <i>Curr Opin Pulm Med</i> 2012;<b>18</b>(2):97–103. Chauvin, Rupley, Eason. Outcomes in cardiopulmonary physical therapy. Chronic Respiratory Disease Questionaire. <i>Cardiopulm phys therapy</i> 2008;<b>19</b>(2):61–67.

Poster presentations
Marie Curie Hospice (GB)
Openalex Percentile: Top 92%
Chronic Disease Management Strategies
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