Disease Burden and Associated Factors in Chinese Patients with Tuberous Sclerosis Complex: Results of a Patient and Caregiver Survey
The study demonstrated that Chinese patients with TSC are confronted with a considerable disease burden. Comprehensive care strategies, tailored educational support for pediatric patients, and multidisciplinary approaches for early diagnosis are crucial for managing TSC.
Authors
- Bixia Yuan
- Fangping Wang
- Jianxiang Liao (ORCID: https://orcid.org/0000-0001-9769-3365)
- Jinzhu Liu (ORCID: https://orcid.org/0000-0002-4722-2431)
- Luyang Zhang (ORCID: https://orcid.org/0000-0003-2620-9251)
- Jinghua Ye (ORCID: https://orcid.org/0000-0003-0842-592X)
Institutions
- TSC Alliance (US)
- Shenzhen Children's Hospital (CN)
Publication Details
- Journal
- International Journal of General Medicine
- Published
- 2025-03-01
- DOI
- https://doi.org/10.2147/ijgm.s507375
- Primary Topic
- Tuberous Sclerosis Complex Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Sanming Project of Medicine in Shenzhen