Systematic Review of Patient and Caregiver Involvement in CKD Research
Consumers were mostly involved in discrete activities with limited decision-making power. Increasing financial, logistical, and training resources for consumers may support more meaningful involvement. Ongoing evaluation of processes or impacts of consumer involvement, including consistent reporting, is needed to strengthen evidence and practice in CKD research.
Authors
- Javier Recabarren Silva
- David J. Tunnicliffe (ORCID: https://orcid.org/0000-0003-3270-3475)
- D. Coghlan
- David M. White (ORCID: https://orcid.org/0000-0002-6372-5311)
- Siah Kim (ORCID: https://orcid.org/0000-0003-3964-2046)
- Jonathan C. Craig (ORCID: https://orcid.org/0000-0002-2548-4035)
- Chandana Guha (ORCID: https://orcid.org/0000-0002-0767-4185)
- Talia Gutman (ORCID: https://orcid.org/0000-0002-6341-8725)
- Nicole Jane Scholes-Robertson (ORCID: https://orcid.org/0000-0001-8260-0453)
- Germaine Wong (ORCID: https://orcid.org/0000-0001-8422-7269)
- Shilpanjali Jesudason (ORCID: https://orcid.org/0000-0001-9695-0761)
- Stephen McDonald (ORCID: https://orcid.org/0000-0001-7151-7654)
- Andrea K. Viecelli
- Anita van Zwieten (ORCID: https://orcid.org/0000-0003-4564-5825)
- Carmel M. Hawley (ORCID: https://orcid.org/0000-0002-1392-5649)
- Armando Teixeira-Pinto
- Allison Jauré
- Adeera Levin
Institutions
- The University of Sydney (AU)
- Royal Adelaide Hospital (AU)
- University of British Columbia (CA)
- The University of Queensland (AU)
- Flinders University (AU)
- Princess Alexandra Hospital (AU)
- Children's Hospital at Westmead (AU)
- Australia and New Zealand Dialysis and Transplant Registry (AU)
- Kidney Health Australia (AU)
Publication Details
- Journal
- Kidney International Reports
- Published
- 2025-03-17
- DOI
- https://doi.org/10.1016/j.ekir.2025.03.018
- Citations
- 3
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 8.45
Funders
- National Health and Medical Research Council