Sociodemographic Characteristics of Patients Seen at Vascular Anomaly Centers in the United States
Patients with vascular anomalies (VAs) require expert multidisciplinary care. No prior studies have characterized the sociodemographic characteristics across multiple VA centers. We collected data on 5783 patients receiving care at 20 VA centers between July 1, 2020 through December 31, 2022. Male patients were underrepresented compared to the state-level census data at 17/20 centers. Black and Asian patients were underrepresented at 14/20 and 12/20 centers, respectively. The median distance to the hospital was 48 miles, and median age was 12.0 years. These data suggest that race, sex, age, and distance from the hospital could impede the ability to access expert VA care.
Authors
- Sumukh Arun Kumar (ORCID: https://orcid.org/0000-0001-9689-9978)
- Jayme Ogino (ORCID: https://orcid.org/0000-0003-1180-1666)
- Vivian Y. Chang (ORCID: https://orcid.org/0000-0002-4538-1500)
- Bryan A. Sisk (ORCID: https://orcid.org/0000-0002-2456-2476)
- Sonal D. Shah (ORCID: https://orcid.org/0000-0002-0336-4278)
- Gayle Smink (ORCID: https://orcid.org/0000-0003-3922-2113)
- Rachael Schulte (ORCID: https://orcid.org/0000-0002-7869-9099)
- Lindsey Mohney (ORCID: https://orcid.org/0000-0002-7883-8888)
- Julie Blatt (ORCID: https://orcid.org/0000-0002-7658-8096)
- Ahmad Al‐Huniti (ORCID: https://orcid.org/0000-0003-3476-4132)
- Erika Pearson
- Joshua J. Bies
- Hannah Fassel
- Elissa Engel (ORCID: https://orcid.org/0000-0002-8604-5511)
- Joana M. Mack (ORCID: https://orcid.org/0000-0003-3893-4709)
- Katherine A. King
- Gita Massey (ORCID: https://orcid.org/0000-0002-9698-909X)
- Whitney Eng (ORCID: https://orcid.org/0000-0002-0103-6000)
- Autumn Atkinson
- Marcia Hogeling (ORCID: https://orcid.org/0000-0002-1404-8860)
- Jamie M. Aye (ORCID: https://orcid.org/0000-0001-8440-1263)
- Kiersten Ricci (ORCID: https://orcid.org/0000-0002-7253-5632)
- Michael D. Fox (ORCID: https://orcid.org/0000-0003-1297-6935)
- Thomas W. McLean (ORCID: https://orcid.org/0000-0001-6535-9450)
- Andrew Tran (ORCID: https://orcid.org/0009-0009-4957-6071)
- Renae A. Tessem
- Melinda Wu (ORCID: https://orcid.org/0009-0007-9649-5771)
- N. Swaminathan
- Sara Alturky (ORCID: https://orcid.org/0009-0006-3145-5392)
- Tyson C. Echols (ORCID: https://orcid.org/0009-0001-9900-6116)
Institutions
- University of North Carolina at Chapel Hill (US)
- University of Southern California (US)
- Indiana University Health (US)
- Cincinnati Children's Hospital Medical Center (US)
- Seattle Children's Hospital (US)
- Mayo Clinic (US)
- Children's Hospital of Philadelphia (US)
- Children's Hospital of Los Angeles (US)
- University of California, Los Angeles (US)
- Oregon Health & Science University (US)
- Washington University in St. Louis (US)
- Brown University (US)
- University Hospitals of Cleveland (US)
- University of Arkansas Medical Center (US)
- Kapiolani Medical Center for Women and Children (US)
- University of California System (US)
- Children's of Alabama (US)
- University of Alabama at Birmingham (US)
- Seattle Children's Hospital (US)
- Hasbro Children's Hospital (US)
- University of North Carolina Hospitals (US)
- Mayo Clinic in Arizona (US)
- Mayo Clinic in Florida (US)
- University School (US)
- The University of Texas Health Science Center (US)
- Children's Hospital of Richmond at VCU (US)
- Wake Forest University (US)
- Indiana University – Purdue University Indianapolis (US)
- Case Western Reserve University (US)
- University of Nebraska Medical Center (US)
- University of Arkansas for Medical Sciences (US)
- Penn State Milton S. Hershey Medical Center (US)
- Vanderbilt University Medical Center (US)
- The University of Texas Health Science Center at Houston (US)
- University of Cincinnati Medical Center (US)
Publication Details
- Journal
- Pediatric Blood & Cancer
- Published
- 2025-03-17
- DOI
- https://doi.org/10.1002/pbc.31661
- Citations
- 1
- Primary Topic
- Vascular Malformations and Hemangiomas
- Type
- article
- Field-Weighted Citation Impact
- 2.01